It's nice that Dr Novak had Brazilian co-authors. We need this knowledge to spread!
@Turtle, I suspect the researchers chose subjects who had complained of frequent orthostatic lightheadedness so that there would be a single...
Finally! I have been suggesting (pestering) for months for them to show a graph from someone with ME/CFS. They call it a flow index.
@Hutan, apologies, I got my wires crossed there. It might be that people with EDS and similar have "floppy veins" leading to poor venous return...
Follow up question: Would prednisolone possibly change antibody levels?
@Jonathan Edwards, that's interesting. No need to rush to have the blood test then.
We have a possible family history of Sjogren's syndrome. My daughter is about to start taking hydroychloroquine (Plaquenil) for other reasons....
I just wanted to add something that might be helpful based on my reading over the past few years. Experiencing orthostatic intolerance...
Thanks, folks, for the helpful replies. I have a horrible feeling that my daughter may need re-testing and that her specialist is going to refuse...
This is a general question, but I know I'll get good answers here, so I hope it's okay to ask. Is it unusual in a clinical setting to do testing...
@Jonathan Edwards, one other thing I should have mentioned is that Dr Novak has stated that cerebral hypoperfusion is the primary cause of only...
I'm sorry it's taken me a while to log back in and reply. There are various researchers who have reported abnormal levels of cerebral...
@rvallee , I'm not an expert, but in all the lectures and articles by "proper" autonomic experts, specialised exercise is recommended for POTS in...
Unfortunately one of the author's names has been spelled wrong in the journal: It is Prof Visser, not Viser. Yikes. (Have written to journal...
I was about to write to some of the researchers and ask them about the different placement of the ultrasound probes when they sent a letter to the...
Of no scientific note: the company has changed name to "Lumia". The press release doesn't say why.
I would really appreciate it if someone with access to the full article could let me know how long the patients were tilted for, and how long the...
Nothing scientific to say, just that this letter makes me and my daughter (who has OCHOS) very happy. I also learned a few things, and it answers...
@SNT Gatchaman , thank you so much.
And there is also mention of “endothelial stabilization”, which sounds like it could be helpful in POTS....
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