I can’t find it again, but I read an article in which a researcher from the early days of IVIg described how they used IV albumin as a placebo,...
I think the researchers acknowledged this somewhere, but albumin has immune-modulating properties, so it’s not an ideal choice as a placebo.
I believe the type of hypovolemia that seems to occur in ME/CFS and POTS does not show up in standard blood tests because there is often nothing...
My daugher obtained a prescription for LDN from her rheumatologist, somewhat to her surprise, but now she is feeling a bit iffy about it. She...
I don’t know whether doctors ever embraced this aphorism from William Osler, but it always comes to mind for me when my daughter is dismissed....
@Ash , sorry, I forgot to check the date of your post.
@LJord , that’s great to hear.
@Ash , perhaps you could try to have your specialist persuade the people doing the tilt table test to add a Doppler ultrasound scan. If the...
@InitialConditions , thank you, will have a look there.
Thank you, @Arnie Pye , I will have a look there.
@Jonathan Edwards , I thought that might be the case (that this forum is unusual). I also thought that there might be some good auto-immune...
My daughter has started seeing a rheumatologist, and I feel I need to read up a bit on autoimmune conditions and ask some newbie questions. Is...
@Ravn , I did hear one of the autonomic experts mention the value of retesting patients over time. He mentioned that some patients’ symptoms seem...
@LJord , that’s great! Hope it goes well at the open house.
Yes, I hope they have an acronym!
Forgot to mention that the technique used is photoplethysmography, which is using light to measure changes in volume. The company has much more...
The research letter is now available to read (no paywall): https://www.jacc.org/doi/10.1016/j.jacep.2023.02.002
If you are in Canada, there is an odd entity that’s been created called “postural symptoms without orthostatic tachycardia (PSWT)”, which is then...
In the absence of access to full autonomic testing, a backwards way to try to elucidate whether you lie in the cerebral vasoconstriction group or...
Another normal HR and BP possibility is described by Dr Novak as HYCH (hypocapnic cerebral hypoperfusion):...
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