Here is @paolo's blog that contains slides from a talk about re-analysing the data from the UK Biobank ME/CFS data. According to one of the slides...
@paolo has an account here but I don't know if he still visits. He's written a number of blogs about tracking his ME/CFS with data through the...
That's interesting. From the Dr Bhupesh Prusty pre-print paper. Increased circulating fibronectin, depletion of natural IgM and heightened EBV,...
Have you been tested for antibodies against the acetylcholine receptor. If not it might be worth doing so.
Search=>Region of gene. e.g. Numbers of cars in household for region 6 shown as a plot (another option is table)...
Yes, it is the UK Biobank dataset search tool hosted by the University of Edinburgh (well it has there logo)....
You need to be careful how you use the genetic database. For example there are a number of genes associated with the number of cars in a household...
Is the hypothesis using data from Dr Cliff's team and their recent published paper? Abnormal T-Cell Activation And Cytotoxic T-Cell Frequency...
Cornell has had $1 billion funding witheld by the US government as of Tuesday 8th April 2025. I'm guessing this will affect the ME/CFS Center at...
They mention that they are using a blood marker that responds to Rapamycin and if the marker increases and the patient improves it is related....
I took a look at Table 2 and Table 3 from the CureME thread/paper "Evidence of Clinical Pathology Abnormalities in People with Myalgic...
Reposting @Dakota15 post on USA news thread. This may be a chance for folks to ask questions they have about Ian Lipkin's teams research. Takes...
Have you seen this from the "Resources for Long COVID Researchers" from the Patient-led Research Collaborative....
Very very similar story here. We did so much to try and prevent the decline. I'm so sorry @CorAnd.
Update from the ME Association / CureME Biobank meeting https://meassociation.org.uk/2025/04/update-uk-me-cfs-biobank-steering-group/ The ME/CFS...
The CureME team has a lot of stored samples ME Association lists the wrong funder for the HHV6B study. It should be the US NIH/NIAID and not the...
On Twitter I asked Karl Morten why his initial muscle cell + patient blood experiments looked so promising but the follow-up was negative. This...
@Jonathan Edwards Have you seen this thread about an Oxford study monitoring muscle with MR Spectroscopy. In the thread there are links to other...
I'm sure this is guiding the NIH RECOVER-ENERGIZE study. Ugh.
New version of preprint | Link | PDF This seems to be the commercial antibody test used from Arup Laboratories. 0051033 Ganglioside (Asialo-GM1,...
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