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  1. wigglethemouse
    Post

    Livestream Alan Light, PhD today at 6pm MST "New findings suggest that multiple mitochondrial mutations create susceptibility for ME/CFS"

    Here are the summary slides at the end of the presentation [ATTACH] [ATTACH] [ATTACH]
    Post by: wigglethemouse, May 18, 2019 in forum: General ME/CFS news
  2. wigglethemouse
    Post

    Genetic Predisposition for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: A Pilot Study 2019 Perez Nathanson Klimas et al

    I believe this paper may be this NOVA study where PwME volunteered their 23andMe data. They advertised quite widely for participants so it's a...
    Post by: wigglethemouse, May 18, 2019 in forum: ME/CFS research
  3. wigglethemouse
    Post

    Lymphocytic gastritis

    @Aurator As you have biopsies available at the pathology lab you can ask your GP/GI doc to put an order in to stain for mast cells and count the...
    Post by: wigglethemouse, May 15, 2019 in forum: General and other signs and symptoms
  4. wigglethemouse
    Post

    Opportunities for researchers with ME?

    Just thought I'd list some ME researchers with ME. I can think of 5, 4 currently in research at Universities. Cara Tomas, Newcastle University...
    Post by: wigglethemouse, May 15, 2019 in forum: ME/CFS research
  5. wigglethemouse
    Post

    Lymphocytic gastritis

    I had chronic gastritis confirmed by a gastroenterologist biopsy with negative Helicobacter. I have no idea how the lymphocytic version compares....
    Post by: wigglethemouse, May 15, 2019 in forum: General and other signs and symptoms
  6. wigglethemouse
    Post

    A nanoelectronics-blood-based diagnostic biomarker for ME/CFS (2019) Esfandyarpour, Davis et al

    Here is an excerpt from Ron Davis's March 2019 Emerge Conference slide. [ATTACH] And this is the Ativan experiment using Seahorse from the same...
    Post by: wigglethemouse, May 15, 2019 in forum: ME/CFS research
  7. wigglethemouse
    Post

    Building an evidence base for management of severe ME (including sleep management)

    Section 6.1 (page 28) of this 2014 Clinical primer has as section on Severe ME if it helps @Jonathan Edwards...
    Post by: wigglethemouse, May 13, 2019 in forum: ME/CFS research
  8. wigglethemouse
    Post

    Building an evidence base for management of severe ME (including sleep management)

    This 100 times. Most sleep doctors do NOT understand ME sleep issues. In the US sleep clinics are huge business. I remember watching a...
    Post by: wigglethemouse, May 11, 2019 in forum: ME/CFS research
  9. wigglethemouse
    Post

    More PACE trial data released

    @Barry @Adrian @sTeamTraen I found the solution to formatting. Replace round brackets with square brackets in the following example...
    Post by: wigglethemouse, May 11, 2019 in forum: Psychosomatic research - ME/CFS and Long Covid
  10. wigglethemouse
    Post

    More PACE trial data released

    I looked at the BBCode rules. Can you try (code)text(code) replacing round brackets with square brackets From :...
    Post by: wigglethemouse, May 11, 2019 in forum: Psychosomatic research - ME/CFS and Long Covid
  11. wigglethemouse
    Post

    Building an evidence base for management of severe ME (including sleep management)

    Alright, how about this book to get an idea of SevereME. Anyone have any opinions on it? Severe ME : Notes for Carers Kindle Edition by Greg...
    Post by: wigglethemouse, May 10, 2019 in forum: ME/CFS research
  12. wigglethemouse
    Post

    In This Doctor’s Office, a Physical Exam Like No Other (NY Times 8 May 2019) - Commentry by Henrik Vogt

    The question I have is why is someone from Norway who likes to "bait" ME patients responding to a news article about research not related to ME,...
    Post by: wigglethemouse, May 10, 2019 in forum: Other health news and research
  13. wigglethemouse
    Post

    Building an evidence base for management of severe ME (including sleep management)

    Have you thought of contacting Dr. Lucinda Bateman? She is chairing a group writing a clinical consensus document which will be written and signed...
    Post by: wigglethemouse, May 10, 2019 in forum: ME/CFS research
  14. wigglethemouse
    Post

    Building an evidence base for management of severe ME (including sleep management)

    Maybe take a look at this book. Seems like some clinics are sharing it. [MEDIA]
    Post by: wigglethemouse, May 10, 2019 in forum: ME/CFS research
  15. wigglethemouse
    Post

    Building an evidence base for management of severe ME (including sleep management)

    Two areas I don't hear talked about enough are SIBO and MCAS. Both have recognised tests available. Some of the US doctors are starting to find...
    Post by: wigglethemouse, May 10, 2019 in forum: ME/CFS research
  16. wigglethemouse
    Post

    Michael VanElzakker

    He may be presenting an update in June as part of the Harvard ME/CFS Research Group update. Session will be videoed for later sharing. [MEDIA]
    Post by: wigglethemouse, May 10, 2019 in forum: ME/CFS research news
  17. wigglethemouse
    Post

    In This Doctor’s Office, a Physical Exam Like No Other (NY Times 8 May 2019) - Commentry by Henrik Vogt

    This is the company Mike Snyder has just unveiled to start the journey https://q.bio/
    Post by: wigglethemouse, May 9, 2019 in forum: Other health news and research
  18. wigglethemouse
    Post

    A nanoelectronics-blood-based diagnostic biomarker for ME/CFS (2019) Esfandyarpour, Davis et al

    10 days after publication in PNAS here are the metrics for the paper. Not half bad. Data from :...
    Post by: wigglethemouse, May 9, 2019 in forum: ME/CFS research
  19. wigglethemouse
    Post

    In This Doctor’s Office, a Physical Exam Like No Other (NY Times 8 May 2019) - Commentry by Henrik Vogt

    Here is the Nature paper the article is based on - A longitudinal big data approach for precision health (Snyder et al 8 May 2019)...
    Post by: wigglethemouse, May 9, 2019 in forum: Other health news and research
  20. wigglethemouse
    Post

    In This Doctor’s Office, a Physical Exam Like No Other (NY Times 8 May 2019) - Commentry by Henrik Vogt

    Okay got this quote from Henrik Vogt in the NY Times
    Post by: wigglethemouse, May 9, 2019 in forum: Other health news and research
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