Great post Trish. Pacing up does seem to be a rebrand of GET and differentiated because it isn't a set graded process. But it's still asking...
Good points @Nightsong - there are definite cross overs with some of the dodgy MECFS researchers of the past. Segal is involved in the Long Covid...
Garner has the fanaticism of an over zealous convert - it's not normal or helpful!
Thanks @Yann04 for including their responses. Interesting, but it doesn't seem any of them have any experience of severe Long Covid or ME....
It does look like the Post COVID Society is based on a BACME model. They are both presenting at each others conferences and strongly invested in...
Had a quick peak on charity commission and they were registered in May 2022. Getting charity status in June 2020 would have been superhuman!...
One other option is it could play into fact checking? ME Fact Checking Fact Check ME Full Facts for ME The Full Story for ME
It's a good point @bicentennial about alienation. It's not the best start for a charity. But it does look an an opportunity was taken by someone...
It's a good name but it does have the possibility of misinterpretation. I like it but trying to get the right interpretation of skeptic in a pithy...
Had a glance at this and SOS are certainly playing on the edge by collaborating with the RCGPs and the Post Covid Society. Makes me wonder how...
A hepa might be worth a go, especially as it can help multiple issues such as air and indoor air pollution and keep the risk of airborne illness...
It does look like both. She is being used but she's also only interested in talking about this all in the media to sell her book. If she hasnt...
Goodness, what a mess. Seriously amazing she said all that out loud and on social media. She sounds confused and let down whilst trying to not be....
Thank you @Jonathan Edwards & Sonya! That all sounds hopeful and positive especially that you both think that things "look as if they might change"
He went into private practice as he couldn't cope with the pace of a NHS general practice. Nothing wrong with that. But compared to other private...
I think it would of been easier if the pot plant woman had the article written by a journalist. But it was all her words. There was no excuse of...
On their being a more formal relationship between S4ME and AFME it might be worth asking if a PPI relationship could be established? It is normal...
Lyme is no joke and it's awful to see that she has been through the levels of denial and dismissal. On one hand she is publicly stating she had ME...
The only good thing about this is that the only airplay he could get was a comment. If he's a Telegraph subsciber - that says alot!! There was a...
A few possibilities: With the change of government it might be worth asking her if she/Action for ME have initiated or had any contact with the...
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