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  1. Caroline Struthers
    Post

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    Every time Cochrane make a tiny change to anything linked to a review, they have to add a note to it. In October, I asked for them to link from...
    Post by: Caroline Struthers, May 22, 2020 in forum: 2021 Cochrane Exercise Therapy Review
  2. Caroline Struthers
    Post

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    Corrected a few typos and posted on my blog...
    Post by: Caroline Struthers, May 22, 2020 in forum: 2021 Cochrane Exercise Therapy Review
  3. Caroline Struthers
    Post

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    I see
    Post by: Caroline Struthers, May 22, 2020 in forum: 2021 Cochrane Exercise Therapy Review
  4. Caroline Struthers
    Post

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    My latest email to Hilda - God loves a trier, right?! Dear Hilda I was a nice surprise to see the note at the top of the abstract linking to...
    Post by: Caroline Struthers, May 21, 2020 in forum: 2021 Cochrane Exercise Therapy Review
  5. Caroline Struthers
    Post

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    Belt and braces. Please send it to her anyway. It is not possible to see the referee reports of the original review because freedom of...
    Post by: Caroline Struthers, May 21, 2020 in forum: 2021 Cochrane Exercise Therapy Review
  6. Caroline Struthers
    Post

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    Absolutely. I have pointed out to Hilda that the three rapid responses to Cochrane's new Risk of Bias tool are relevant to the production of a...
    Post by: Caroline Struthers, May 21, 2020 in forum: 2021 Cochrane Exercise Therapy Review
  7. Caroline Struthers
    Post

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    Hi there - did you send this to Hilda? I can forward it to her if you wish? Or will she see it on here...?
    Post by: Caroline Struthers, May 20, 2020 in forum: 2021 Cochrane Exercise Therapy Review
  8. Caroline Struthers
    Post

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    I have now posted the correspondence with Cochrane on my blog. Hilda is not going to list it because it's not what this particular list is about....
    Post by: Caroline Struthers, May 20, 2020 in forum: 2021 Cochrane Exercise Therapy Review
  9. Caroline Struthers
    Post

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    I think it's going to have to be Hollywood blockbuster, no? "Cochrane...we have a problem...."
    Post by: Caroline Struthers, May 19, 2020 in forum: 2021 Cochrane Exercise Therapy Review
  10. Caroline Struthers
    Post

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    Thanks so much for your feedback - I take the point about the relevance of quoting the previous Editor-in-Chief - absolutely. I am trying to get...
    Post by: Caroline Struthers, May 19, 2020 in forum: 2021 Cochrane Exercise Therapy Review
  11. Caroline Struthers
    Post

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    Hilda not hopeful Cochrane will spend time defending the indefensible - which admittedly would take an awful lot of time. It would be better not...
    Post by: Caroline Struthers, May 18, 2020 in forum: 2021 Cochrane Exercise Therapy Review
  12. Caroline Struthers
    Post

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    I know that Hilda attended at least one meeting with Cochrane about the review in the time after I met Karla in July 2019 and when the amended...
    Post by: Caroline Struthers, May 17, 2020 in forum: 2021 Cochrane Exercise Therapy Review
  13. Caroline Struthers
    Post

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    Attached is recent correspondence between me and Hilda, initiated by me after the post-COVID fatigue advice leaflets published and then withdrawn...
    Post by: Caroline Struthers, May 17, 2020 in forum: 2021 Cochrane Exercise Therapy Review
  14. Caroline Struthers
    Post

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    [MEDIA] Atle Fretheim is Lillebeth Larun's (author of Exercise for CFS review) boss. Isn't Hilda aware he is the person who refused to allow...
    Post by: Caroline Struthers, May 14, 2020 in forum: 2021 Cochrane Exercise Therapy Review
  15. Caroline Struthers
    Post

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    Nope. But the review will be carried out by central Cochrane people, rather than the usual volunteer teams (like Larun and co.) who rock up to...
    Post by: Caroline Struthers, May 14, 2020 in forum: 2021 Cochrane Exercise Therapy Review
  16. Caroline Struthers
    Post

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    I agree 100% with this!
    Post by: Caroline Struthers, May 13, 2020 in forum: 2021 Cochrane Exercise Therapy Review
  17. Caroline Struthers
    Post

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    Hi everyone Today I got a response from Hilda - see attached
    Post by: Caroline Struthers, May 12, 2020 in forum: 2021 Cochrane Exercise Therapy Review
  18. Caroline Struthers
    Post

    Editorial: Transcutaneous electrical nerve stimulation (TENS) for chronic pain: the opportunity to begin again : Travers, Eccleston et al Apr 2020

    Actually - at least they specify how future research on TENS should be done. But should it be done?? It would now be unethical to do research on...
    Post by: Caroline Struthers, May 4, 2020 in forum: 'Conditions related to ME/CFS' news and research
  19. Caroline Struthers
    Post

    Editorial: Transcutaneous electrical nerve stimulation (TENS) for chronic pain: the opportunity to begin again : Travers, Eccleston et al Apr 2020

    Cochrane never do overviews of all available treatments for a single patient population. These would be potentially quite useful, even if they...
    Post by: Caroline Struthers, May 4, 2020 in forum: 'Conditions related to ME/CFS' news and research
  20. Caroline Struthers
    Post

    Advice from 'experts' on post-viral fatigue following Covid-19 (NHS Oxford Health, Science Media Centre, ...)

    On Tuesday, to follow up from a message I sent on Friday 17th I wrote to the Cochrane Independent Advisory Group for the update to the Exercise...
    Post by: Caroline Struthers, Apr 23, 2020 in forum: Long Covid news
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