I agree with Jonathan about PEM not being only due to exertion, and that the variability and time frames of the symptoms severity are important....
I agree with those objections. Maybe something about "PEM is typically delayed 24 hrs after physical exertion, but is (typically?) shorter after...
Do we have the technology to detect that in PWME? If yes, I assume the tests were negative, else it would be newsworthy. If it's possible to...
That's my guess too. I do wonder how easy it will be to find subjects near enough to that hospital. Maybe they'll need to open it up to subjects...
The only "newness" of my ME is which foods or food components I'm sensitive to. My main symptoms are lethargy and brainfog, and the severity...
Wouldn't they get multiple mutually contradictory experiences, since PWME differ so much? One gets PEM from moving their arms, but can talk for...
I think their argument that "It is not about ‘every other Swede’" translates to "I know of at least 3 people in Sweden who already follow a...
I think it's one of those cases where an ideal professional could help, but will that be 1/1000 or 1/10000000000000 professionals? How do you...
I had an unexpected worsening of my symptoms yesterday, and it definitely didn't fit my concept of "fatigue". "Malaise" fits better, although...
Yes, vague definitions really aren't helping with ME research or education.
I think they could use more information to convince them to err on the side of caution while they learn their limits. It might help to have...
My main symptoms are brainfog and lethargy, and "lethargy" is definitely different from "fatigue" or "tiredness". I can do strenuous physical...
Could the differences be due to different lifestyles (activity, diet, etc) and different exposure to pathogens? I'm guessing that someone with...
I think it's worth pointing out that many (most?) PWME want to be more active. They don't need a professional encouragement. A gadget that...
Pacing doesn't need professional guidance; it needs personal awareness and experience. Over time, PWME get better at judging when they can do a...
I wouldn't fit that label, since "fatigue" isn't one of my symptoms.
I managed to block my PEM maybe 10 years into my ME. That means there's some mechanism that can block PEM. Why couldn't someone have that...
Might "hypersensitivity" be a better term than intolerance? It might better communicate that it's a biological dysfunction, rather than a...
Any tool can be used well, or abused. I was thinking more along the lines of a note somewhere in the criteria saying that a lack of PEM is not...
I'd like to see that part of general education. Start with elementary school, maybe with examples of toys that look awesome in commercials, yet...
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