What is involved in getting a SIBO diagnosis, and do the NHS test for and diagnose this now?
I have tweeted about the issue of services blatantly ignoring the guideline. The tweet is not specifically about this instance—more my general...
I think this goes beyond the language used. As I pointed out earlier in this thread, it seems Richard is using DwME to indulge his myriad personal...
That is my understanding too. There are at least two other working groups as part of the ME/CFS Delivery Plan. It might be worth starting a new...
Update: The conference planning has been put on hold due to the recent UK government ME/CFS Delivery Plan and, in particular, formation of the...
I am not on the forum much at the moment as I'm in a crash, but PAG will co-chair the new subgroup on ME. This group is newly formed. Our...
Thanks. Yep, I have done a bit of interent searching over the years and myositis is the one thing that always comes up. But I don't think I have...
This is interesting. I assume this refers to microscopic firmness, but on a macroscopic level my muscles have completely changed since I've had...
I'm happy to answer on this thread any questions you might have. And I'll try and make sure this thread is updated into the future with any updates.
Mod note: There are three groups in the UK government's ME/CFS Delivery Plan of which the Research Working Group is one. The other two groups,...
What do you think it would tell us that we don't already know/suspect? Because tinnitus is not well understood at all. I have read some of the...
I don't think Richard is suggesting that OP doesn't get it checked out, particularly as OP seems to be recovered/in remission. There is limited...
Sorry to hear you have developed tinnitus. I have severe tinnitus, with onset over ten years ago. If it's just starting, my advice would be don't...
Full text: Patients with myalgic encephalomyelitis (ME) can expect to see more research and support for the condition, which “has been neglected...
I have been off the forum for a few days, but I can say there was press lined up for Wednesday, but the Partygate stuff scuppered some of that.
Now received.
I am wondering if anyone has access to the Benefits & Work PIP Guide. I have an older version from when I subscribed, but would like to get hold...
Yep. Seen a lot of this recently in the more vocal parts of the LC community. It's not helpful. I like this sentence from John Ioannidis. One...
Someone is continuing to conflate their role in DwME with their personal interests and professional/corporate experience in unrelated sectors.
Yep, I use cognitive dysfunction/impairment.
Separate names with a comma.
