I finally remembered to post about the new website on mastodon. https://disabled.social/@ahimsa_pdx/110471105334440006 I don't have a lot of...
NIH news release dated May 25: Large study provides scientists with deeper insight into long COVID symptoms...
[Moderators - please move if this goes too much off topic. Thanks!] I'm not trying to pick on Emily Taylor, or disagree with her comment. But...
From the Washington Post: For covid long-haulers, the pandemic is far from over The end of the public health emergency leaves many fearful they...
Adding a link to another article that criticizes this exercise trial: Why is the medical community still ignoring long COVID?...
Can you expand on this? My understanding is that POTS is a syndrome that falls under both of those umbrella terms - dysautonomia and orthostatic...
Merged thread Edit: The story's headline has been changed. The old headline sounded a bit like patients did want help, or perhaps patients didn't...
Thanks! I do get it now that you've explained it. :) But for some reason there were too many steps between the old phrase "yuppie flu" and your...
I think this was a joke (Re: "participants in the most deprived decile had a higher risk of Long COVID") but I don't get it. I believe the study...
[wasn't sure where to post this...] Washington Post: Denials of health-insurance claims are rising — and getting weirder Regular link:...
I found an article talking about the Metrodora Clinic and its CEO:...
I went to the patient questionnaire on their website to see what information they were gathering. One of the questions is, "Are you a previously...
Brooke Keaton has posted a transcript of her speech from the May 12 Millions Missing event on Medium. She is a Covid Long Hauler....
I saw a great response to a CDC tweet about ME/CFS Awareness Day: Text: "We don't need the CDC to light its campus blue. We need them to educate...
Novel Rutgers vaccine may provide more durable protection against SARS-CoV-2...
Merged Christoph Ströck, board member at TEMPI-Foundation, posted these tweets today: 1 - "I believe NOW is the time to lobby and advocate for...
Thanks, I did briefly wonder if maybe it was something in my browser (blocking trackers or something like that).
That twitter link doesn't seem to work for me. Perhaps the tweet was deleted? Or user was suspended? Do you remember what it said? (I've added...
Here are two videos posted by MEAction on their youtube channel. This first one is a very short video (2 1/2 minutes) that shows the cots on the...
A post from Encephalogirl about Bateman Horne Center's two virtual ME Awareness events in May:...
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