I also included Other because part of PEM for me is waking up a lot more times during the night. - On a good night I wake up about 4 times. (that...
Recordings for parts two and three of the Severe ME/CFS webinar series are now available on SolveME's youtube channel: Severe ME/CFS Webinar...
New post (January 23) from #MEAction: "The Year Ahead" Some of the topics covered in this article: Ways to get involved with #MEAction...
Note: I have no medical background, these are just some comments from a patient who has orthostatic intolerance. I can't provide the medical...
Huh, I think that's the first time I've seen a headline use the phrase "debilitating chronic syndrome" to refer to ME/CFS. Much better than using...
There's also this website with more info: https://disabilitycovidchronicles.nyu.edu/book/how-to-be-disabled-in-a-pandemic/
Important update: This date for this webinar has been changed to January 21. The dates shown by the website and the registration link have now...
"Solve Board Member Cynthia Adinig Selected for HHS Long Covid Advisory Committee"...
New blog post (Jan. 10, 2025) by Suzanne D. Vernon: COVID-19 Triggers ME/CFS https://batemanhornecenter.org/covid-19-triggers-me-cfs/ (line...
Next up in the Sunday Conversations series: “Going into the new year, what are your hopes and dreams?” Sunday, January 19 4 p.m....
The story had no link to the bill (or maybe I missed it...) but I'm pretty sure the legislation being discussed is the Long Covid Moonshot bill....
You don't need to convince me! :) Maybe you can copy/paste your post as a public comment - the more comments they get, the better! This is a...
For folks in the USA there is a proposal to remove the exception that allows "productivity-based subminimum wages to workers with disabilities."...
Here's where this information can be found on the Bateman Horne Center website: https://batemanhornecenter.org/providers/medical-education/cme/
COVID 5 years later: Learning from a pandemic many are forgetting Five years after SARS-CoV-2 surfaced, scientists reflect and look ahead to the...
Tuesday, January 21: Free, professionally-facilitated online support group https://batemanhornecenter.org/event/online-support-group-87/ Topic:...
Tuesday, January 14: Free, professionally-facilitated online support group https://batemanhornecenter.org/event/online-support-group-86/ Topic:...
"Solve Sponsors Long Covid Medical Education Event at the University of Rochester"...
The Arctic Plague Ship That Disabled A Best Selling Author https://www.donotpanic.news/p/the-arctic-plague-ship-that-disabled Covid then was...
Thanks for your comments! I'm unable to analyze these things, I'm just posting links that I find, so it really helps to have others add comments.
Separate names with a comma.
