When talking with folks in the USA I often mention that the reason I use ME/CFS vs. other alternatives is that this is the term used by the CDC,...
An episode from Ground Truths, a podcast by Eric Topol: Svetlana Blitshteyn: On the Front Line With Long Covid and POTS A pioneer in dysautonomia...
You know, whenever I get that "How would you rate your health?" question it is hard for me to say "poor" even though I'm disabled. Part of it is...
Repeat COVID-19 vaccinations elicit antibodies that neutralize variants, other viruses...
#TeachMETreatME: Celebrating An Impactful Campaign https://www.meaction.net/2024/05/17/teachmetreatme-celebrating-an-impactful-campaign/ Lots...
I'm still planning to come back and post a short report but I've been delayed a bit. I spent all my mental energy posting on Mastodon and Bluesky...
[I think this belongs here - please move if necessary] A Fight About Viruses in the Air Is Finally Over. Now It’s Time for Healthy Venting...
There's a short "Teach ME Treat ME" video (1 minute) available on YouTube that you can share on social media. "Years to Diagnosis of ME - video...
I posted a link to this MEAction article in the News from Organizations section but I thought I should crosspost it here. This year's Millions...
#MillionsMissing Week is Here: #TeachMETreatME in Action!...
Next online support group from Bateman Horne Center: Tuesday, May 14 1 PM Mountain Time / 3 PM Eastern Time / 8 PM Great Britain & Ireland...
#MEAction’s Jaime Seltzer Selected for TIME100 Health 2024...
I'm not following most of this in real time but I am taking screen shots which I hope will help!
I tuned in about 15 minutes ago, expecting it to start at about a quarter til the hour, but it's still showing lunch break. The screen says 108...
I'm on the west coast so this NIH symposium starts at 6 AM my time (Pacific time). But I'm going to try to watch this section (starts at 9:45 AM...
My catheter ablation for SVT was yesterday. I almost had to stay overnight but managed to get discharged eventually. Happy to be home, resting...
Yes! I got an autoreply:
Thanks for posting that link! I could not figure out how to write an email with input for the Senate Health, Education, Labor, and Pensions...
I have no idea, and I doubt most of the folks who are making these changes to the Medicare rules have any idea of the complexity of the issues...
Thanks for sharing the link. TL;DR (summary) for folks who need it: The author is diagnosed with “moderate obstructive sleep apnoea” and is...
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