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  1. Saz94
    Post

    What's the main MECFS org in Canada?

    Thank you.
    Post by: Saz94, Oct 30, 2023 in forum: Organisations relevant to ME/CFS and Long Covid
  2. Saz94
    Thread

    What's the main MECFS org in Canada?

    Friend is in Canada, has ME/CFS. What's the Canadian equivalent of the ME Association or #MEAction and is it any good? i.e. providing information...
    Thread by: Saz94, Oct 28, 2023, 6 replies, in forum: Organisations relevant to ME/CFS and Long Covid
  3. Saz94
    Post

    Covid-19 vaccines and vaccinations

    Did you get much side effects? Previously I've had very mild side effects from Pfizer but I don't know if that'll be the same for the updated one?
    Post by: Saz94, Oct 20, 2023 in forum: Epidemics (including Covid-19, not Long Covid)
  4. Saz94
    Post

    Feeling insecure about romantic relationships

    I don't have the energy to go into this properly but. In general, autistic people find the way that neurotypical people communicate to be very...
    Post by: Saz94, Oct 13, 2023 in forum: Relationships and coping
  5. Saz94
    Post

    Feeling insecure about romantic relationships

    Hey @Hoopoe, do you want to maybe screenshot this post for yourself? Then I can delete some private details.
    Post by: Saz94, Oct 13, 2023 in forum: Relationships and coping
  6. Saz94
    Post

    Feeling insecure about romantic relationships

    Yes, this is my experience. . Maybe. Personally I've always been autistic. And I feel that non-autistic people with ME behave/talk quite...
    Post by: Saz94, Oct 13, 2023 in forum: Relationships and coping
  7. Saz94
    Post

    Feeling insecure about romantic relationships

    Is this a members-only thread btw? If not then I will delete some of the details from my post after Hoopoe has read it.
    Post by: Saz94, Oct 13, 2023 in forum: Relationships and coping
  8. Saz94
    Post

    Feeling insecure about romantic relationships

    Okay so, I thought I'd never be able to have a relationship while I'm sick (and I can barely leave the house), but I'm now 8 days off from my 6...
    Post by: Saz94, Oct 13, 2023 in forum: Relationships and coping
  9. Saz94
    Post

    Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS

    If you're in the UK you can request a full copy of your medical records. I'm pretty sure they're legally obliged to comply under GDPR.
    Post by: Saz94, Oct 8, 2023 in forum: General ME/CFS discussion
  10. Saz94
    Post

    Review Functional neurological disorder and functional somatic syndromes among sexual and gender minority people: A scoping review 2023 Lerario, Perez et al

    Wait wait this is just homophobia and transphobia??? Why did someone decide "we need to find out whether these illnesses we don't believe in are...
    Post by: Saz94, Oct 8, 2023 in forum: Psychosomatic research - ME/CFS and Long Covid
  11. Saz94
    Post

    Anyone seen Dr Bansal, Dr Lulsegged or Paul Jenkins ?

    If you DM me I will respond as soon as I can. But I've been rather ill recently so might be a while. (Nothing to worry about! I had a vomiting...
    Post by: Saz94, Oct 7, 2023 in forum: UK clinics and doctors
  12. Saz94
    Post

    Anyone seen Dr Bansal, Dr Lulsegged or Paul Jenkins ?

    Is this a Members Only thread is what I meant?
    Post by: Saz94, Oct 3, 2023 in forum: UK clinics and doctors
  13. Saz94
    Post

    Anyone seen Dr Bansal, Dr Lulsegged or Paul Jenkins ?

    Is this thread private? I have experiences with two of the doctors mentioned above but need to know if thread is private before i proceed.
    Post by: Saz94, Oct 3, 2023 in forum: UK clinics and doctors
  14. Saz94
    Post

    Severe ME Day, August 8 2023 and Severe ME week

    I wrote up a Twitter thread to mark today [MEDIA]
    Post by: Saz94, Aug 9, 2023 in forum: General ME/CFS news
  15. Saz94
    Post

    Disorder or difference? Autism researchers face off over field’s terminology, 2023, Rachel Zamzow

    Yeah the evidence of this only came out in 2018 I think
    Post by: Saz94, Feb 9, 2023 in forum: Other health news and research
  16. Saz94
    Post

    Bath-ing after foot surgery

    Okay I found a website that sells protectors that can be submerged in water it’s all good https://bloccs.com/
    Post by: Saz94, Feb 9, 2023 in forum: Home adaptations, mobility and personal care
  17. Saz94
    Post

    Bath-ing after foot surgery

    Honestly I think I would hate that I need to properly wash myself off in water! (Also my mum definitely wouldn’t do it, I CAN shower it’s just...
    Post by: Saz94, Feb 9, 2023 in forum: Home adaptations, mobility and personal care
  18. Saz94
    Post

    Bath-ing after foot surgery

    Trying to wash myself in a basin would be far more tiring lol
    Post by: Saz94, Feb 9, 2023 in forum: Home adaptations, mobility and personal care
  19. Saz94
    Post

    Bath-ing after foot surgery

    Ear plugs dampen the noise but the noise is still very tiring for me Shower chairs do not solve the problem either - they’re not supportive, it’s...
    Post by: Saz94, Feb 9, 2023 in forum: Home adaptations, mobility and personal care
  20. Saz94
    Post

    Disorder or difference? Autism researchers face off over field’s terminology, 2023, Rachel Zamzow

    It’s not just a thing of “he was a bad person separately to his medical work”. He literally sent autistic children to be killed.
    Post by: Saz94, Feb 9, 2023 in forum: Other health news and research
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