In 2023 the UK ME Association announced it was funding a project, currently ongoing, which is developing Patient Reported Outcome Measures...
PETITION UPDATE 21 March 2024 21 Mar 2024 Petition presented to Cochrane with a renewed call for withdrawal on the basis of harms On 17th March...
On 17th March 2024 the Science for ME Committee sent the following: To Jordi Pardo Pardo - Interim Chair of the Cochrane Governing Board Karla...
PETITION UPDATE 15 February update We are still waiting Six years ago this week, the late Robert Courtney (Bob) sent a letter of complaint about...
The committee received the following email from Cochrane on Tuesday 19th December, posted on the open letter thread, and also here for comments:...
The committee received the following email from Cochrane on Tuesday 19th December. We have also posted it on the Petition thread so members can...
PETITION UPDATE December update DEC 18, 2023 The day after our last petition update, the S4ME committee sent a letter to the Head of Governance,...
On 20 November the Science for ME committee sent the following reply to Ms Lucy Johnson-Brown, Head of Governance, Cochrane Central Executive...
PETITION UPDATE Cochrane refuses to follow its own complaints procedure NOV 19, 2023 — As we have reported, the Science for ME committee...
On 17 November 2023, we received the following email from Ms Johnson-Brown, refusing to consider our letter of complaint: _____________ Dear...
As Ms Johnson-Brown had clearly confused the formal complaint with the open letter, the forum committee sent the following email in reply, on 17...
On 13th November, the forum received the following letter from Cochrane regarding our letter of complaint: ___________ Dear [member of the forum...
PETITION UPDATE News from Cochrane, or rather from the Independent Advisory Group NOV 12, 2023 — Silence has been broken after a hiatus of...
PETITION UPDATE The call from patient organisations grows stronger - Cochrane continues to show no sign of listening NOV 8, 2023 Five more...
PETITION UPDATE Complaints to Cochrane Christchurch, New Zealand OCT 31, 2023 — Cochrane has a system whereby complaints, defined as 'an...
Today the Science for ME Committee sent a letter of complaint to the Cochrane Complaint email address covering five specific complaints. It has...
LETTER OF COMPLAINT Today the Science for ME team sent the following letter to the Cochrane Complaint email address: ______________________ To...
PETITION UPDATE 22 Oct: The office of the Editor-in-Chief replies OCT 21, 2023 — In our letter of 8th October addressed to the Chief Executive...
And the petition update posted on 18 October: PETITION UPDATE 18 October 2023: Cochrane's quality control processes are broken OCT 18, 2023 —...
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