1.30 pm - 2.30 pm IMMUNOLOGY Inhibition of autophagy induces chronic fatigue in mice: a potential mouse model to study ME/CFS Avik Roy, Simmaron...
10.30 am - 12.30 pm Provocative Maneuvers: Methods to Induce Symptomatic Features of ME/CFS Rochelle Joslyn (moderator), IACFS/ME Mark VanNess,...
We have four threads, one for each day of the conference. Please add the following to these threads: * reports from forum members attending the...
3.00 pm - 5.00 pm ME/CFS and Long COVID Federal Advocacy Update Emily Taylor, Solve ME/CFS Initiative, USA BG Wright, Shea McCarthy, Thorn Run...
11.30 am - 1.30 pm Patient/ Caregiver Perspectives on Research - Participation and Priorities Rochelle Joslyn, US National Institutes of Health...
A warm welcome to the Science for ME forum! We’re glad you found us. Science for ME is an independent, patient-led, international forum for...
From the committee: The views expressed by members in this thread were summarised and considered as the letter was drafted by Jonathan in...
3/3 1.17 Care for people with severe or very severe ME/CFS 24. Recommendations on 'Severe and very severe ME/CFS' have been moved into a single...
2/3 Medicines 15. Page 32, 1.12.15 There are no medicines or supplements that have been shown to be an effective treatment for ME/CFS. Therefore...
Science for ME's Feedback on substantive errors in the August 2021 version of the Guideline Submitted to NICE on 11 August 2021 1/3 We have...
Stakeholder submissions and NICE responses This thread is for discussion of the published tables of stakeholders submissions to the NICE ME/CFS...
This post will be used to link other threads with relevant information and discussions. NHS website pages on ME/CFS updated 29th October 2021...
S4ME Press statement: New NICE guideline creates hope for change at last The National Institute for Health and Care Excellence (NICE) has today,...
This public thread is for general discussion of the much anticipated NICE 2021 ME/CFS Guideline including media and social media responses and...
From S4ME Management Committee On Monday 30th August (a UK bank holiday), the S4ME committee sent by email the letter posted in the opening post...
The following letter was sent by email by the S4ME management committee to NICE to express our concerns and ask for clarifications about the...
2018 Hope 4 ME & Fibro Northern Ireland annual conference, Monday 17th September 2018 Livestream Tuller and Hughes 2 Oct 2018 Newry : The PACE...
The S4ME Management Committee has decided, with regret, that we will not be making an S4ME submission to the CDC Evidence Review consultation....
The forum staff believes it is important that the CDC receives well-informed feedback on this evidence review given that it will inform the...
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