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  1. MErmaid
    Post

    Stanford ME/CFS Initiative: PEM Avoidance Toolkit

    I agree. I think we are saying the same thing so let me add more meat to your rebuttal. Maybe the posters here are conflating PEM with a PEM...
    Post by: MErmaid, Jan 26, 2018 in forum: Post-Exertional malaise and fatigue
  2. MErmaid
    Post

    Treatment suggestions for Orthostatic Intolerance (POTS or NMH)

    [ATTACH] Gaia Licorice Root (alcohol free) This is my suggestion. Follow the instructions on the bottle. If it works, then great.
    Post by: MErmaid, Jan 26, 2018 in forum: Orthostatic intolerance treatments
  3. MErmaid
    Post

    Stanford ME/CFS Initiative: PEM Avoidance Toolkit

    Who needs Biology? Maybe you missed my A-B-C video? To avoid PEM, you just gotta go with the flow, and move your feet to the beat. :rofl::laugh:...
    Post by: MErmaid, Jan 26, 2018 in forum: Post-Exertional malaise and fatigue
  4. MErmaid
    Post

    Stanford ME/CFS Initiative: PEM Avoidance Toolkit

    Looking forward to your comments after the read :)
    Post by: MErmaid, Jan 26, 2018 in forum: Post-Exertional malaise and fatigue
  5. MErmaid
    Post

    Stanford ME/CFS Initiative: PEM Avoidance Toolkit

    In between the “before” and “after” images, I’d maybe consider a few “during” ones too; well, at least for the comical impact. We don’t want our...
    Post by: MErmaid, Jan 25, 2018 in forum: Post-Exertional malaise and fatigue
  6. MErmaid
    Post

    Stanford ME/CFS Initiative: PEM Avoidance Toolkit

    Futhermore, if you don’t follow the published PEM guidelines, then you the sick patient are at fault for still being sick. Cuz, didn’t you know,...
    Post by: MErmaid, Jan 25, 2018 in forum: Post-Exertional malaise and fatigue
  7. MErmaid
    Post

    Stanford ME/CFS Initiative: PEM Avoidance Toolkit

    Thanks for asking. I would not want the finely dressed woman, whom I observed that day, to represent THE “poster child” of ME. We need to find a...
    Post by: MErmaid, Jan 25, 2018 in forum: Post-Exertional malaise and fatigue
  8. MErmaid
    Post

    Japan Me Association: "Accolades for our Documentary Film"

    From my understanding, JMEA President and ME patient Mieko Shinohara, appears in Unrest.
    Post by: MErmaid, Jan 25, 2018 in forum: Advocacy Projects and Campaigns
  9. MErmaid
    Post

    Unrest - reviews and general articles

    I am sympathetic to the authors candid display of anger, frustration, abondonment, and isolation. But her conscious choice to repeatedly channel...
    Post by: MErmaid, Jan 25, 2018 in forum: General ME/CFS news
  10. MErmaid
    Post

    First Non-Human Primates Cloned

    “I’m A Believer”
    Post by: MErmaid, Jan 25, 2018 in forum: Other health news and research
  11. MErmaid
    Post

    Why we victim blame -- and why Larry Nassar shows we shouldn't

    If I may edit your post: If the institution is not bad, why is it ELECTING predators? :mad:
    Post by: MErmaid, Jan 25, 2018 in forum: Relationships and coping
  12. MErmaid
    Thread

    First Non-Human Primates Cloned

    [MEDIA]
    Thread by: MErmaid, Jan 25, 2018, 3 replies, in forum: Other health news and research
  13. MErmaid
    Post

    How do we partner with Pharma?

    Thanks for posting. It’s great to see new ideas emerging, and new paths forming. I especially enjoyed this quote: “This is a shot across the bow...
    Post by: MErmaid, Jan 25, 2018 in forum: ME/CFS research
  14. MErmaid
    Post

    My letter to the CDC concerning Kaiser Permanente still recommending GET

    Wow, @Webdog, you are challenging KP!!! Way to go!!! Please keep us in the loop and let us know how we can help!
    Post by: MErmaid, Jan 25, 2018 in forum: Open Letters and Replies
  15. MErmaid
    Post

    Stanford ME/CFS Initiative: PEM Avoidance Toolkit

    If I may add a bit more about perceptions and misperceptions. I feel if the Stanford ME PEM document get published “as is” on the Stanford ME...
    Post by: MErmaid, Jan 24, 2018 in forum: Post-Exertional malaise and fatigue
  16. MErmaid
    Post

    Stanford ME/CFS Initiative: PEM Avoidance Toolkit

    After rereading my post, I could have used the word “misperception” instead of “perception”. From my view (whether accurate or not), in the...
    Post by: MErmaid, Jan 24, 2018 in forum: Post-Exertional malaise and fatigue
  17. MErmaid
    Post

    Stanford ME/CFS Initiative: PEM Avoidance Toolkit

    Futhermore, to add my thoughts about the Stanford ME Clinic, and perceptions about ME; on one of my visits I saw a well groomed woman wearing...
    Post by: MErmaid, Jan 24, 2018 in forum: Post-Exertional malaise and fatigue
  18. MErmaid
    Post

    Stanford ME/CFS Initiative: PEM Avoidance Toolkit

    All great points, as usual, @Invisible Woman We need to be a part of the patient input process to overhaul this doc. It’s giving an impression...
    Post by: MErmaid, Jan 24, 2018 in forum: Post-Exertional malaise and fatigue
  19. MErmaid
    Post

    Stanford ME/CFS Initiative: PEM Avoidance Toolkit

    There is more work to be done in educating others. Many think these examples ARE realistic. This what I have been trying to say, but have done a...
    Post by: MErmaid, Jan 24, 2018 in forum: Post-Exertional malaise and fatigue
  20. MErmaid
    Post

    Stanford ME/CFS Initiative: PEM Avoidance Toolkit

    Yes, I agree. In the US, this is what the public sees and acknowledge as ME, (what you refer to as newly ill) and apparently what the Stanford ME...
    Post by: MErmaid, Jan 24, 2018 in forum: Post-Exertional malaise and fatigue
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