BMJ article - "Chronic fatigue syndrome: Outcry over Cochrane decision to abandon review of exercise therapy":...
AfME doesn't have a particularly high level of trust in the UK ME patient community. It seems they have improved quite a lot of late but on the...
Just to note that Hilda has made a few additional remarks in this Bluesky thread; there is also some discussion of context & background, including...
https://donate.ed.ac.uk/support/ME-CFSResearch
Someone asked (on another thread which I can't find now) about the citations all the different versions have accumulated, so I used Web of Science...
Well, good for Hilda. I rather expected her to simply turn away, as so many others have done over the years. Given Cochrane's leadership is...
Interesting opinion piece in the BMJ (open access) encouraging patient engagement in research & addressing some sceptics' common arguments:...
They do mention a test set:
"Biopsychosocial" is one of those Janus-faced words, like "functional", but Engel's vision always was a fully psychosomatic one. A freely...
I wonder how many pwME experience the "tired but wired" phenomenon? Again, one of these things I've not really experienced. I don't think we've...
The Current and Future Burden of Long COVID in the United States (U.S.) Background Long COVID, which affects an estimated 44.69-48.04 million...
Just noting that in an email bulletin today ("The Year Ahead"), ME Action made the following statement about the Cochrane problems: Link: ME...
Corresponding author has a Substack and a Xitter account with quite a bit of ME/CFS discussion (haven't read through but, looking at the titles,...
Fatigue vs non-fatigue subgroup comparison: [ATTACH] FGF21 - primarily secreted by the liver, is a significant regulator of glucose & lipid...
... Reference [39] is to this paper which reported that plasma levels of FGF21 and NT-proBNP were significantly elevated in ME/CFS patients...
Background Recent proteomic studies have documented that Long COVID in adults is characterized by a pro-inflammatory signature with...
It was invented by an American psychiatrist in the 1970s: https://en.wikipedia.org/wiki/George_L._Engel The original paper was "The Need for a...
Most professionals have been taught that the "biopsychosocial" model / view is a very good thing; a move away from biological reductionism towards...
Wyller et al have published a critique of the generalisability of this paper: "ME patient experiences: Sampling bias limits the external validity...
Searching my collection of papers, it looks like these questions were taken from another scale called "Adult Responses to Children's Symptoms"...
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