"BMJ published paper highlights key findings from The MEA’s Count ME In survey" (MEA) "Earlier diagnosis and better care needed for ME and Long...
From HB's blog, today: https://hildabastian.wordpress.com/2025/04/03/getting-through-hard-times/
Abstract The British National Institute for Health and Care Excellence (NICE) published its updated guidelines for myalgic...
Article in Salon today: "Trump admin's attacks on chronic disease research abandons long COVID and ME/CFS patients... Again Budget cuts and the...
MEA update on the new end-of-June publication timeline, which apparently "follows requests from the Task and Finish Group members to allow for...
"Trial By Error: New Study Documents Iatrogenic Harm from Perceived Psychosomatic and Psychiatric Misdiagnoses of Rheumatic Diseases":...
David Black on O'Sullivan, the DWP, as well as some of the history (even mentions SW & the Woodstock conference):...
A poster presentation about a feasibility study of pacing with a heart-rate monitor by Physios for ME: Link __ In the same journal supplement it...
Merged thread Long COVID Risk Loci Implicated from Genome-Wide Association Studies of COVID-19 Susceptibility and Hospitalization Abstract:...
Vink M, Vink-Niese F. Are cognitive behavioral therapy and a group physical and mental health rehabilitation programme effective treatments for...
Yeah, n=13 for fatigue, 7 of those with amantadine. Here's the table of treatments for each indication: [ATTACH]
"Two age peaks in the incidence of chronic fatigue syndrome/myalgic encephalomyelitis: a population-based registry study from Norway 2008-2012"...
On US studies exploring overdiagnosis - there's this Komaroff et al paper that surveyed nurses: "Over-diagnosis also was common: four times as...
Some results from MEA's online survey on diagnosis that they ran earlier this year. For many questions they've differentiated out diagnoses made...
There's an article in Nature with more details about the whole grant-cancellation debacle along with two internal documents from the NIH. Iwasaki...
Hilda Bastian has posted another blog about Cochrane, mainly concerning open access to Cochrane reviews & how this might be funded, but which also...
NHS Scotland has a website with CPD courses for primary care clinicians: https://www.cpdconnect.nhs.scot/search-results?query=chronic fatigue...
Only skimmed very briefly but it's apparent that many of the assumptions they have made are rather conservative - e.g. they assume a probability...
Yup. Looking back at the paper I spotted another one, too - "capability player bias" (probably an automated rephrasing of "participant bias")....
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