A fascinating, and deeply troubling, tale. I was in the early stages of my illness but not part of any patient groups at the time so it's curious...
This is just a farrago of gibberish. It's a bunch of half-understood ideas and half-baked concepts plucked from the literature and re-assembled...
Alice James was indeed a fascinating individual - one of the three or four 19th century diarists who wrote about the illnesses by which they were...
Unfortunately they determined whether patients were or were not experiencing PCS using the Chalder scale: The group characteristics and SUV data:
Cardiopulmonary and metabolic responses during a 2-day CPET in myalgic encephalomyelitis/chronic fatigue syndrome: translating reduced oxygen...
It may not be a conflict of interest in the classical sense but allowing Garner to be involved with such a review such as this shows poor...
From the ME Research UK June newsletter: This is absolutely not supported by the evidence. If I recall correctly with most small fibre...
That's a really excellent overview. (You should post it as a new thread; it definitely deserves wider attention.) I'll try and track down the...
Just skimmed this very quickly. Initial thoughts: The patients "with infection-associated ME/CFS with ongoing recurrent infections" - IMHO this...
Management of Nutritional Failure in People with Severe ME/CFS: Review of the Case for Supplementing NICE Guideline NG206 (preprint) @Jonathan...
The direct Qeios links are: Link: https://www.qeios.com/read/T9SXEU PDF version: https://www.qeios.com/read/T9SXEU/pdf and the DOI:...
May also be of interest that the authors have made at least three patent applications relating to their TRP cation channel work:...
I've read it all. It is quite unpleasant, but not blatantly so: rather, it drips its bile through insinuation. A "curious disregard for hysteria"....
Copied from this thread The NHS is apparently rolling out a "reasonable adjustment flag" to share details of physical, sensory, communication &...
The NHS is apparently rolling out a "reasonable adjustment flag" to share details of physical, sensory, communication & other impairments across...
That's brilliant. An incisive summary of the problem, excellent recommendations, and very, very welcome. (As someone who has suffered from this...
Dysautonomia in its classical sense is not just a clinical syndrome. POTS is meant to be diagnosed based on subjective and objective features but...
Hope this works: [ATTACH]
Have you seen this one?
I really don't like the term "neuroimmune exhaustion". Hemiplegic migraine is rare (prevalence about 0.01%) and I've never seen any evidence of a...
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