Excellent blog, as usual. I suspect there isn't a lot of outright fraud in the ME/CFS field, just incompetence, vested interests, and third-rate...
From Isabella Cueto's article in STAT+ - hope the genetics work at Edinburgh is not going to be affected by this:
"Trial By Error: My 2018 Post on Andrew Lloyd’s Memory Lapses, Revisited"...
Abstract: Visceral pain disorders such as interstitial cystitis/bladder pain syndrome (IC/BPS) and irritable bowel syndrome (IBS) often manifest...
There's a quite detailed meeting report on the NIAID RECOVER-TLC workshop in Nature Immunology. A few snippets:
This is a misrepresentation. Kingstone et al. report that participants found NHS guidance advocating graded exercise to be unhelpful and even...
CS writes to the MP in charge of the DHSC delivery plan:...
... and Pollak's reply. Thoughtful in places, and quite right about the proliferation of unevidenced & potentially harmful treatments, but still...
https://www.meaction.net/wp-content/uploads/2019/04/NICE-Patient-Survey-Outcomes-CBT-and-GET-Oxford-Brookes-Full-Report-03.04.19.pdf
An article in New Scientist called "Fight the Fatigue" that briefly mentions ME/CFS. It's somewhat muddled in places but thought it worth posting...
Abstract: Purpose Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and Post COVID-19 Condition (PCC) are debilitating, chronic...
£23.5bn is in excess of other figures I've seen for ME/CFS in the UK. On the Government's interim delivery plan web pages they cite a report that...
A letter to the editor, commenting on a recent study which linked glucocorticoid therapy in COVID-19 patients to an increased risk of long COVID....
Copied post and some subsequent posts moved to this thread APPG minutes from 5th March:...
APPG minutes from 5th March: https://appgme.co.uk/wp-content/uploads/2025/03/2025-03-05-APPG-on-ME-Minutes.pdf
Tom Molmans' letter to the editor: Link | PDF
[12] is this predictive-processing paper.
The patient cohort: The retreat from the cognitive behavioural model is interesting, even if the authors do favour a predictive-coding model...
MDPI's approach to special issues is quite well known & has always struck me as another example of borderline predatory methods from that...
DW story based on: "Macrophage peroxisomes guide alveolar regeneration and limit SARS-CoV-2 tissue sequelae" (Wei et al, Science 387;6738) also...
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