There have been some quite perturbing stories on Bluesky recently of people being cajoled into undergoing the LP by NHS clinicians; there seems to...
Seems to be a psychobabble/neurobabble app. The company that produces the app is "Freeme Health Ltd" - looks like a one-man operation. Further...
Just had a brief skim. Something that this does (inadvertently) demonstrate is just how poor a lot of fatigue research actually is. The authors...
On several other NHMRC pages relating to ME/CFS (link, link) there is an email address that begins me_cfs@ (with an underscore, not a dash)....
Abstract: Long COVID represents a significant global health challenge with an unclear etiology. Alongside accumulating evidence of mitochondrial...
"Spring update from Physios for ME": https://www.physiosforme.com/post/spring-update-from-physios-for-me
Abstract: We proposed that cerebrospinal fluid would provide objective evidence for disrupted brain metabolism in myalgic...
May also be worth drawing it to the attention of the University of Auckland's research ethics committee.
Canary story about someone campaigning for a harms reporting system for non-pharmaceutical interventions such as CBT & GET - "Government hit with...
Full text: Link | PDF
The index case in Afrin's book was a patient with polycythaemia but who didn't have the genetic markers usually associated with polycythaemia...
And I think there's another one: 14 males (vs 13/13 in Table 1). The final study sample included 54 participants (27 participants with PCC and 27...
Very interesting. Don't think potential confounding can be ruled out - PCC patients had higher resting HR & respiratory rates than controls (87...
I'm absolutely not doubting anyone's symptoms, and I understand why people have become attached to the diagnosis, but most people with a serious...
https://www.actionforme.org.uk/news/me-and-long-covid-workshop/
Abstract: This article conveys how taking patient knowledge seriously can improve patient experience and further medical science. In clinical...
And if 7/12 had 0 hours per week and one patient reported 40 hours at worst - given the skew shouldn't a non-parametric test or log transform be...
A few more thoughts: * Of the 12 contactable, all agreed to be interviewed. Such an agreement rate is unusual in research. And by the time of...
"Validation of L-type calcium channel blocker amlodipine as a novel ADHD treatment through cross-species analysis, drug-target Mendelian...
Huh. "Audit or research?" - Arroll as one of the two authors (NZ Med J 2001; 114: 499-500-2) (p20+ of the PDF):...
Separate names with a comma.
