Despite being steeped in confusing language, there's definitely a kernel of truth here. Many people with complex illnesses are disbelieved because...
I knew of one person who experienced that. An ME/CFS specialist told her, "Don't join any support groups or you'll get worse." It's absurd....
The source appears to be this: [MEDIA]
Agreed. Using modern definitions of ME should be a requirement for research. Nobody should fund anything that uses Fukuda, etc.
Scientific papers on LTSE are lacking. It's a hard subject to research because it can be hard to tell if overdoing it was the cause, or someone...
That's...depressing. They haven't funded anything biomedical except DecodeME?
My mom said she's particularly angry about this sentence, because how can you actually predict that? I like that the article said that, because...
A hash is when you take a bunch of data (could be text, numbers, a large computer file) and you run it through an algorithm that "scrambles" it to...
*Chucks the paper into the wastebasket*
Sounds like they're hashing your personal info
I've heard nothing good about how Australia manages ME or LC. I hope their plan involves doing something, and that it's not just talk.
I haven't pushed for a GWAS because DecodeME exists. Hope I can trust the British scientists this time ;). But seriously, we need a GWAS for long...
I can't believe they still use terms like this. Not understanding what's wrong is equated with nothing being wrong.
Wow, I've never seen Ron Davis speak about CBT/GET before. He doesn't talk about advocacy much, as if the idea the ME is mental illness is too...
6 million for a single project would allow for a large and rigorous study to reproduce previous findings.
The biggest flaw is that they're not similar at all. Subtle changes in the brain? Sure. But it just doesn't jive with things like POTS/OI, SFN, or...
I'm gonna be sad if there's a vaccine for HIV, but I'm too sick to need it because there isn't a treatment for ME. I think that's likely.
Vaccination induces HIV broadly neutralizing antibody precursors in humans https://www.science.org/doi/10.1126/science.add6502 Human vaccination...
Before reading this paper, I had no idea that blood vessels had blood vessels. The human body is amazing.
Darn it, I wish there was at least ONE aspect of ME pathology that had rock solid research, meaning replicated multiple times. I'm tired of the...
Separate names with a comma.
