Wow, the CEO of AIM Immunotech takes LC and ME/CFS very seriously. They're clearly devoted to testing Ampligen in LC because they see it as a...
Restricting participation to people with diagnosed ME is the right thing to do. If this works out (half seriously) we can always do a DecodeLC...
From a Workwell Email: This is approximately 160 km (100 mi) northwest of their location in Ripon, CA, meaning more people will be able to reach...
I also think they did a good job. They must have managed to recruit a significant fraction of all people in the UK with a ME/CFS diagnosis....
This was the most-read article on Washington Post yesterday: [MEDIA]
I share my experiences openly because it helps me feel better, and because it might spark change.
Yeah, medical records are extremely GIGO. I'll give you my favorite example. A neurologist said I might have a certain genetic disorder, and to...
Could be useful if effective but would be very difficult to prove any effect.
I don't have much to say. I just hope she is able to get to a better hospital or get care at home.
Psychiatry is absolutely, I mean, fundamentally broken when it comes to issues around informed consent. The minute a patient makes a decision...
I don't know. With anorexia, there's this extreme push to make people eat. With ME, there's the assumption that you either don't want to eat or...
I strongly support giving people with anorexia the option of palliative care. People with anorexia are absolutely competent to make their own...
On Sunday I visited the ER for a vision issue. I saw many providers, none of whom asked me about my code status. I wanted them to put a DNR/DNI...
This is pretty good news. Unfortunately no details like staffing or funding that would allow us to estimate how much research they'll be...
Last week, as I was leaving the grocery store, someone stopped their car to yell at me, "Psycho! Get the fuck out of here with that Covid shit!"...
They're putting a lot of people who can't realistically work in the work-related activity group. If the government tries to force people to do...
You might want to discuss the US vs. UK difference in how claims are reapproved as well. In the UK, if I understand correctly, when it's time for...
This is, I mean, utterly extreme compared to how disability benefits are assessed in America. We have a 5-step process. An extremely condensed...
So it could be more than 125 million, but the exact amount depends on how much money to government allocates to research? Still, that's very...
So 125M Euro? Wow.
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