I sent him an email w link to this thread.. maybe he’ll come back.
@paulendat Just wanted to bring your attention back to this post by Jonathan.. do you have any comment on the points he raises on the itaconate...
It’s high frequency focused ultrasound (HIFU) and is currently approved as a treatment for essential tremor and tremor dominant Parkinson’s. It...
ChatGPT on how it could be relevant to ME: https://t.co/ZeNbT2aHVm
[MEDIA]
https://archive.ph/ea6sQ Hundreds of thousands of people affected by long-term COVID-19 in Germany alone are pinning all their hopes on research,...
The Advanced Grant from EU is 2.5M, with an additional 1M in setup costs. Could be put together with other funding....
ME Advocates Ireland also insist on the international consensus criteria....
Interesting to see this small group in Valencia has done a few papers on ME. They have a GP working with them on the clinical side, Dr. Eva Martin...
Would they sell it to the researchers at reduced cost and not the wholesale price? It says Keytruda is $11,500 a dose.
Just putting this here in case useful tool for the researchers looking at DecodeME data. [MEDIA]...
Hi.. sadly zero effect on neuropathic itch or ME symptoms. The doctor was really expecting it to help with the itch, so it’s a pity.
Another biobank and registry.. https://www.metrodorainstitute.co/metxstudy Contribute to the Biobank Biofluids Solid tissue Pathology blocks...
SGB is quite an ordeal to go through for a person with ME, requiring day surgery procedure with sedation. The sedation and the SGB itself leave...
Yes. I used this tool to read synopsis of video and that’s the word. https://www.summarize.tech/
Another idea is Vitalik Buterin.. he has funded a lot of long Covid projects. Don’t know if he’d do anything for ME. His foundation — Balvi — says...
[MEDIA] Leora Horwitz: “Yes, PASC algorithm includes symptom severity; for ME/CFS we required reduction in overall function but not every symptom...
Chest aching and pressure was my first major symptom and lasted for first year of illness. I think it is often part of post-viral onset of...
Turned it off at the presentation on fatigue in long Covid by two people at Johns Hopkins. Basically a further effort preference study. So offensive.
Separate names with a comma.
