https://www.charite.de/service/pressemitteilung/artikel/detail/charite_startet_erste_klinische_studien_bei_post_covid_und_chronischem_fatigue_syndr...
Lols oh my god great sleuthing.. :rofl::laugh:
Poor Jeff.. must be hard for him. [MEDIA]
Hi.. I’ve done the 2 day CPET with Betsy Keller. It sent me from moderate to severe and I highly recommend against doing it. (Bizarrely the...
Fluge and Mella still seem to be interested in rituximab maybe for a subset. That’s what I took from their recent video presentation anyway. One...
I was in the original Facebook group for CCI. I do think there are a percentage of people who may have been misdiagnosed with ME who actually have...
Agree, same.
[MEDIA] This is a presentation by Karl Johan Tronstad from the ME Research Group at University of Bergen and Haukeland University Hospital.
I’m sure I smelled different for the first two to three years of illness — a sort of bitter smell. Past few years, back to normal.
I don’t know why Candadian criteria considered absurd. Anyone know? It works better for me than ICC. [MEDIA]
[MEDIA]
https://www.medrxiv.org/content/10.1101/2021.09.21.21263845v2 Abstract While significant attention has been paid to the immunologic determinants...
Agreed. It’s wild when you look at the funding that HIV gets. I think it’s $28B annually. They get prevention programs, treatment, awareness,...
Always confused when patients or doctors tell journalists that ME symptoms “can be managed w meds”. Can it? Mine is not managed. I saw two ME...
It’s a bit uncomfortable but totally manageable and doesn’t take too long.
I am also never without one for my icebox feet. I just bought it on Amazon. Have used daily for 6 years. [MEDIA]
ME action is tweeting live from where protesters are blocking a street in downtown DC. They’re asking for people to retweet and tag congresspeople...
This is exciting. I’m grateful to any ME activist who will endure arrest for our cause. Excited to see MillionsMissing progress to civil...
Wow.. what an exciting result.
Sadly, the entire history of our disease is unacceptable and long and depressing.. :(
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