Universities are doing it. If they develop a technology or a product they patent it and get paid licensing fees. Some universities have like...
AFAIK, NIH doesn’t do translational research (ie early stage hypothesis generating). They fund research that is further along with a lot of data...
I would much prefer the scientists use their time as they did to talk freely about their work, than do the open talks for patients. I just want...
Quite a long thread of responses on here: [MEDIA] Most of whom are not members of this forum afaik, some long Covid advocates, all agreeing with...
Really worth a read. A lot of great ideas expressed about the experience of living with ME on the psyche, and how one changes and copes. I found...
I don’t know exactly either what’s going on.. but was concerned by the tweets. She’s have obv been in press a lot about her comments on trans...
[MEDIA] [MEDIA] Twitter user handle “ME rights” in second screenshot: [MEDIA] Looks quite unreadable..
Thread reporting upcoming Phase II RCT using monoclonal antibody Temelimab in Long Covid. Trial based in Geneva, paid for by Swiss govt. The drug...
This is a good thread querying the numbers cited by Brookings and their data analysis. [MEDIA] Katie Bach responds on twitter, with responses...
https://www.rcsi.com/dublin/news-and-events/news/news-article/2022/08/rcsi-research-finds-blood-clotting-imbalance-persists-in-long-covid The...
Exciting Solve are doing this big campaign with proper media budget. As for the creative, like the “how long?” message but really wish they had...
My sister went on pill for a year to treat fibroids at age 43. She developed breast cancer after a year and totally regretted going on the pill as...
Great to hear from Adam and to get his perspective as an advocate.
Hi Wyva, I’ve had light and sound sensitivity which started year 2 of my illness. It’s much worse for sharp, loud or high pitched voices (or dogs/...
I’ve always thought there were red flags around Kauffman. On PR, patients of his would report on treatment protocols that seemed very heavy handed...
[MEDIA]
Reviewed in this article: https://www.nih.gov/news-events/nih-research-matters/brain-cells-control-sickness-symptoms And mentioned in this...
https://www.tandfonline.com/doi/abs/10.1080/03007995.2022.2096351 This study aimed to describe the neurological improvements in a patient with...
He clarifies that gene product was discovered to be raised in the ME cohort of the NIH intramural study which will be published by 2023.
You mean where he says “..five or ten patients..”? :)
Separate names with a comma.
