There are a lot of things that could be done better. The tone, verbiage and style shouldn’t get in the way of the message to such a huge degree....
Both Ramyar @InfiniteRubix and Nina @EducateME participated in the members only thread and welcomed feedback — until people became alarmed last...
More from Dr. Hng.. “..people who may be currently misleading you about me, or even about DwME” DwME are doing quite a good job of making...
@cassava7 This is terrible. I’m sorry you had to deal with this. You handled it very well and were absolutely clear and polite. This whole...
This is very insulting. They are clearly on board with the communications then, so not much else to be done.
Honestly.. I am a communications professional. This is not a normal way to present ideas. He says on Twitter: [MEDIA] So.. they’re representing...
They’re building a new platform from scratch? What on earth.. there are loads of cloud based digital tools for these types of activities. Well,...
CLUES TO LONG COVID Scientists strive to unravel what is driving disabling symptoms...
Can’t he put a billion in then? Why are we scraping for money??
This is v interesting direction. Makes me feel more optimistic. Thanks to Janet for getting Ron talking! And — this project is funded by Vinod...
Was excited about this until I read his profile. Herbs and acupuncture. https://www.uclh.nhs.uk/our-services/find-consultant/dr-saul-berkovitz
Interesting thread.. Thanks for sharing. That’s what I was referencing here about 1 to 4 months between acute infection and chronic illness onset.
The James lab also had preliminary findings as stated on the page I referenced above: “Our encouraging preliminary data shows increased...
Interesting. Can’t wait to see the results of the James Lab’s sudy on ME/CFS patients using a similar radioligand [11C]DPA-713. I think this study...
I think that the problem is that for many ME patients, if they became ill 1 to 3 months after an acute infection, it was not considered as being...
Am also confused that Ron said being up all night and asleep during day typical for ME patients. Not for me. Is it really typical for many? I...
Ron appears to want this device to cost very little, so I am assuming that’s why he won’t put it in a company, raise capital and develop it as a...
Thanks @Hutan. Confused that he talked about studying patient populations that are not ME. Is the HSE study done in order to contribute to ME...
Am just hypothesizing here but.. throughout Covid, scientists used preprints to get information out quickly. Perhaps that is the case here since...
They are not testing for clots prior to offering HELP apherisis. I am in the FB group and patients have said this. They offer it to anyone who...
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