Can anyone translate.. is this promising?
Vision impairment for me is a hugely disabling feature of my Severe ME. In my first two years of illness it came and went, would be better and...
I’m severe so always in bed and can’t sit up for long. I stopped using a laptop.. had to force myself to stop working so took away my tools. Also...
Bloomberg Twitter spaces session about long Covid.. ME mentioned briefly half way through by the physician guest as being a possible beneficiary...
My sister has sinus disease and asthma and has huge deterioration w wet weather. I think it’s more to do with barometric pressure systems changing...
Re the symptoms: perhaps like ME patients they don’t have the usual response to a virus (sniffles etc) but do have an ongoing fatigue / PEM bc of...
https://www.nytimes.com/2022/01/13/health/multiple-sclerosis-epstein-barr-virus.html?referringSource=articleShare Interesting similarities to ME...
This is exciting.. Ron Davis and Naviaux both wanted to try this for us, but couldn’t access the drug. Great it will get done regardless.
Everything in America is political — unfortunately long Covid will likely become part of the right v left culture war. This is way beyond our...
And unfortunately, Solve ME recently hosted Patterson on a webinar. I feel this may have legitimized him to patients.
8 years Onset 3 months after bad virus, which itself was 4 months after my first influenza infection (all symptoms I had were same as ME 7 months...
Hmmn disappointed to see Bruce Patterson given this interview. IncellDx seems like a total scam to me and Patterson to be the chief snake oil...
I still have faith in them, and especially in the metabolic trap theory. And I think in recent months they’ve dialed back the communications. I...
Quite disappointed that two researchers with apparent promise have signed on to this. Feels like whenever I’m excited about an ME researcher, they...
Drs. Selin and Gil have both NIH funding and Solve ME Ramsay Grant funding.. https://solvecfs.org/liisa-selin-and-anna-gil/
Interesting, have seen that mentioned multiple times in the press, that long covid onsets often 3 months after infection. Correlates to my own...
Wow. I thought the ME association was one of the good ones? This is very disappointing, based on the interview transcript above. Would stop my...
Exciting.. we need more specialist clinics, we need a high tech approach, love there’s embedded research and bio bank, and the fact that she’s a...
NIH has just held a call for the “Recover” project (https://recovercovid.org/) regarding their announcement today of a $470M project to build a...
I had a Cigna long term disability policy which I fought very hard for benefits from during 2014 — 2018. I was cut off and had to appeal 3 times....
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