Def not me.. I think post covid ME, and ME itself will be the AIDS of the next decade in terms of research attention. I can’t think of a more...
Copied from the long Covid thread. __________________ This NIH blog is really promising:...
This NIH blog is really promising: https://schorline.ninds.nih.gov/2021/02/05/long-term-covid-19/#more-1654 NINDS is leading and funding studies...
Agreed.. Does this has any relevance to the metabolic trap theory? They mention “alternate steady state”, which reminded me of the systems...
https://www.frontiersin.org/articles/10.3389/fmed.2021.628029/full?utm_source=F-NTF&utm_medium=EMLX&utm_campaign=PRD_FEOPS_20170000_ARTICLE Here...
https://www.cam.ac.uk/stories/longCOVID Includes some dismissive comments about “CFS” and still no interest from the quoted researchers about...
Moved post responding to NYT article I really hope that the Mount Sinai post covid center turns into a post-viral illness or ME/CFS center. The...
Amazing, wonderful news.. Long covid syndrome likely encompass many conditions including organ damage to lungs, heart etc, but it’s bound to be...
My experience: I did 8 weeks of 1 hour sessions of Hbot at 2.4ATA in hospital setting.. did nothing at all for my ME sadly.
This might be getting off topic but were the placebo results from rituximab trial 10.. 20.. 30% improvement or were they full recovery? I wonder...
I have the genetic markers for the IDO2 metabolic trap (checked by Robert Phair). Abilify did nothing for me, at any doses.
Also, I just want to say that it’s not doubting someone to not know if their response is fluctuating disease, placebo or real improvement. They...
Hi @Jaybee00, I am not saying it’s not going to be helpful for some ME patients, but that I’m not sure it will be a “huge” drug for most of our...
I think people are making 10 to 20% improvements at most, and several are saying it’s wearing off effectiveness. I had no improvements at all, and...
I have been on abilify for 6 weeks. I went up to 2mg for a week, and am now back down at 1.5. It hasn’t helped me, really at all, in any dosage....
I take .25mg Lorazepam..
Yes.. several of us are trialing it. It’s discussed in this thread.
How are you doing now @chelby? I started abilify about a month ago at .25mg. First two weeks as I went from .25 up to .75, very bad worsening of...
It’s also connected to low dopamine at night. The Parkinson’s patch med Neupro — a dopamine agonist —is approved as a treatment. May be...
If it works for some of us, might indicate that there is a population of ME patients where the dopamine system is a large player in the pathology....
Separate names with a comma.
