He apparently has a daughter with ME.. he funds some OMF projects.
[MEDIA]
I tried taking it and had bad experience. I would recommend cutting the 25mg tablet in half w a pill splitter if you are sensitive to meds. My...
There are a number of threads on r/cfs about these drugs too. Some people found it helped their symptoms, some didn’t. Doesn’t seem to be a magic...
This was ok, I guess good for the BBC but as a non British viewer I find it awfully “polite”, this British way of “keep calm and carry on”, don’t...
[MEDIA] Go to this thread for details and discussion:...
John communicated all that so perfectly.. just heartbreaking to hear of his loneliness and to identify with it.
Another great blog post by Samuel.. https://www.samuelkronen.com/p/greatest-medical-scandal-of-the-century
From this interview with the NIH Director:...
18 deaths in six years from malnutrition in very severe ME? This is even more than I knew of or would have expected. This is crazy.
Jonathan.. You’ve mentioned this hypothetical scenario twice.. is this a hint at an early finding? :)
Quote from Nath.. ???!!!!
Amazing.. about $46k.. good for them for doing this. Great way to show the disease.
Please tweet at the Weekly Show to ask Jon Stewart to cover ME.. lots of the 250+ tweets are ME and LC related.. [MEDIA]
https://www.biorxiv.org/content/10.1101/2024.06.17.599450v1?ct= [MEDIA]
I think the problem is that too many patients who do have what is considered “normal imaging” present with symptoms which are ME + some of the...
Limb girdle muscular dystrophy mentioned in this article, amazingly albuterol is the treatment — it would be an easy med for ME patients to try,...
Find it so interesting that clinicians talk up LDN and mestinon.. Have never spoken to a patient where either help primary ME symptoms, and most...
@Trish I used the word “harp” which seems to have upset you. I don’t know if people are continuing to voice disapproval, or if he is just upset at...
I agree with you. Everything you say is spot on, and you could see the hurt / frustration in his facial expression. He simply is not used to being...
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