I don’t have muscle weakness but there is a significant group of patients who have difficulty moving legs and arms and presumably they have severe...
But part of the problem in ME is that your effort preference during activity is to KEEP EXERTING. When I had moderate ME I could feel relatively...
https://www.statnews.com/2024/02/21/nih-study-myalgic-encephalomyelitis-chronic-fatigue-syndrome-news/ For a disease that just decades ago was...
https://www.eurekalert.org/news-releases/1034817 To study fatigue, Dr. Nath and his team asked participants to make risk-based decisions about...
Presume she means 5am Eastern so 10am GMT. [MEDIA]
https://precisionlife.com/news-and-events/biohackathon-mecfs [MEDIA]
Thank god this is looking more optimistic. Sarah is wonderful. She mentions that Maeves father Sean being a seasoned journalist also helped with...
https://www.nationalgeographic.com/premium/article/post-exertional-malaise-me-cfs-exercise-energy “For many people with long COVID, a major...
There appear to be multiple patients in extreme physical danger dealing with NHS failures right now. Someone is reporting on Phoenix rising about...
The organizer put out a press release.. For Media Inquiries, Please Contact: Sally Callow, Founder- ME Foggy Dog Contact – sally@mefoggydog.org...
Hi Sarah.. It says on website that it’s meant to be taken every night.. not as a rescue. It works over time. Maybe worth taking every night for a...
I lived in Portugal 6 years ago, and back then there was almost no awareness of ME. It’s amazing to see this happen there. One of my doctors there...
https://conferencia-emsfc-pos-covid.pt/ The 1st International Conference on Clinical and Scientific Advances in ME/CFS and Long COVID aims to...
https://www.nytimes.com/2024/02/01/well/chronic-disease-callout.html?smid=nytcore-ios-share&referringSource=articleShare From the article: I’m...
That’s odd.. The campaign that Ray Dalio ran only ran for 20,000 cards and they were all taken by Dec 16 or 17 I think. Also, you had to go...
The Ray Dalio one ended in December.. Are you sure you weren’t spammed?
Agree, at first I thought this was good. And then I realized she was assigning the pain of for example one woman seeing her brother as being a...
Some ME or “CFS” patients already trying these drugs for weight loss. Some seem to find “reduces fatigue”, some don’t, some don’t tolerate....
I took Hydroxychloroquine for about three months. It didn’t help my primary ME symptoms but it seemed to prevent headaches. I had no headaches the...
I guess the only way to know is to try it. Insomnia is a brutal thing and we’re all told benzos are so bad for our brains. My hope is that this...
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