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  1. Gecko
    Post

    MUS: Shaky Evidence, Shaky Practice - Talk by David Tuller in Sheffield. 2:30pm 16th March 2020

    JOIN US ONLINE OR BY PHONE – DO NOT COME IN PERSON. We are now asking all attendees to please not come in person on Monday, but instead join us...
    Post by: Gecko, Mar 15, 2020 in forum: Advocacy Projects and Campaigns
  2. Gecko
    Post

    MUS: Shaky Evidence, Shaky Practice - Talk by David Tuller in Sheffield. 2:30pm 16th March 2020

    We're still on. Really pleased that despite Dr David Tuller being unable to travel from America due to coronavirus, he will still be giving his...
    Post by: Gecko, Mar 12, 2020 in forum: Advocacy Projects and Campaigns
  3. Gecko
    Post

    OMEGA (Oxford M.E. Group for Action) AGM - Guest speaker Caroline Struthers 14 March 2020

    This looks set to be a great event, fab you've got Caroline speaking. Is there any chance anyone would be able to livestream it? I'm sure members...
    Post by: Gecko, Feb 20, 2020 in forum: General ME/CFS news
  4. Gecko
    Thread

    MUS: Shaky Evidence, Shaky Practice - Talk by David Tuller in Sheffield. 2:30pm 16th March 2020

    David Tuller has kindly agreed to return to Sheffield for another lecture, this time on Medically Unexplained Symptoms. The term medically...
    Thread by: Gecko, Jan 27, 2020, 12 replies, in forum: Advocacy Projects and Campaigns
  5. Gecko
    Post

    Action for ME: GP home visits under threat

    Motion passed - shockingly...
    Post by: Gecko, Nov 22, 2019 in forum: General disability topics and advocacy
  6. Gecko
    Post

    Closed England & Wales: Survey: Involving adults with severe ME/CFS symptoms in developing a NICE guideline on ME/CFS

    [MEDIA] Tweet from Keith at 3:51pm today (Sunday 17th 2019) saying: Glad to hear they've had a big response, really hope they've had enough...
    Post by: Gecko, Nov 17, 2019 in forum: Recruitment into current ME/CFS research studies
  7. Gecko
    Post

    Closed England & Wales: Survey: Involving adults with severe ME/CFS symptoms in developing a NICE guideline on ME/CFS

    Aye looks like there's a save button, but this doesn't appear to give you a link or anything to go back in later, so I'd leave the tab with the...
    Post by: Gecko, Nov 16, 2019 in forum: Recruitment into current ME/CFS research studies
  8. Gecko
    Post

    Closed England & Wales: Survey: Involving adults with severe ME/CFS symptoms in developing a NICE guideline on ME/CFS

    Impressed you got through it! Not you, name and contact details aren't asked for - I presume they've just used some standardised GDPR questions....
    Post by: Gecko, Nov 15, 2019 in forum: Recruitment into current ME/CFS research studies
  9. Gecko
    Post

    PACE trial TSC and TMG minutes released

    Perfect! Cheers @Michiel Tack
    Post by: Gecko, Oct 26, 2019 in forum: Psychosomatic news - ME/CFS and Long Covid
  10. Gecko
    Post

    PACE trial TSC and TMG minutes released

    Just having a brain freeze: can anyone remind me where it was said that they changed the recovery thresholds so they were more in line with other...
    Post by: Gecko, Oct 26, 2019 in forum: Psychosomatic news - ME/CFS and Long Covid
  11. Gecko
    Post

    'Controversies and Cock-ups in ME research: The Role of Human Failings' - Prof Brian Hughes to speak at Sheffield ME & Fibro Group Conference

    Aaaand Q&A up on YouTube too: [MEDIA]
    Post by: Gecko, Oct 24, 2019 in forum: Advocacy Projects and Campaigns
  12. Gecko
    Post

    'Controversies and Cock-ups in ME research: The Role of Human Failings' - Prof Brian Hughes to speak at Sheffield ME & Fibro Group Conference

    Q&A on now: [MEDIA]
    Post by: Gecko, Oct 24, 2019 in forum: Advocacy Projects and Campaigns
  13. Gecko
    Post

    'Controversies and Cock-ups in ME research: The Role of Human Failings' - Prof Brian Hughes to speak at Sheffield ME & Fibro Group Conference

    Youtube version here: [MEDIA] Unfortunately it missed a couple of minutes in the middle, after which the video went out of focus and despite...
    Post by: Gecko, Oct 24, 2019 in forum: Advocacy Projects and Campaigns
  14. Gecko
    Post

    'Controversies and Cock-ups in ME research: The Role of Human Failings' - Prof Brian Hughes to speak at Sheffield ME & Fibro Group Conference

    If anyone has any questions for Brian, I can get them to be asked in the Q&A session after his talk if you post here before about 3:45pm.
    Post by: Gecko, Oct 24, 2019 in forum: Advocacy Projects and Campaigns
  15. Gecko
    Post

    'Controversies and Cock-ups in ME research: The Role of Human Failings' - Prof Brian Hughes to speak at Sheffield ME & Fibro Group Conference

    Starting now! Watch the livestream of Professor Brian Hughes talk on Facebook here: [MEDIA]
    Post by: Gecko, Oct 24, 2019 in forum: Advocacy Projects and Campaigns
  16. Gecko
    Post

    'Controversies and Cock-ups in ME research: The Role of Human Failings' - Prof Brian Hughes to speak at Sheffield ME & Fibro Group Conference

    Bump - starts at 2:30pm today. Will post link to livestream when it goes live.
    Post by: Gecko, Oct 24, 2019 in forum: Advocacy Projects and Campaigns
  17. Gecko
    Post

    Your experience of ME services - #MEAction UK survey report concludes services 'not fit for purpose'

    Great to have another overview and pull out some more quotes, thank you @Michiel Tack, and ditto re thanks to @Tom Kindlon for all your doing to...
    Post by: Gecko, Oct 23, 2019 in forum: General ME/CFS news
  18. Gecko
    Post

    'Controversies and Cock-ups in ME research: The Role of Human Failings' - Prof Brian Hughes to speak at Sheffield ME & Fibro Group Conference

    Yup, I'll upload it to the group's YouTube channel afterwards.
    Post by: Gecko, Oct 23, 2019 in forum: Advocacy Projects and Campaigns
  19. Gecko
    Thread

    'Controversies and Cock-ups in ME research: The Role of Human Failings' - Prof Brian Hughes to speak at Sheffield ME & Fibro Group Conference

    This Thursday 24th October: Autumn conference, with guest speaker Professor Brian Hughes from 2:30pm All welcome, or watch the livestream on...
    Thread by: Gecko, Oct 22, 2019, 24 replies, in forum: Advocacy Projects and Campaigns
  20. Gecko
    Post

    NICE Guideline review: Call for evidence on myalgic encephalomyelitis (or encephalopathy)/chronic fatigue syndrome, deadline 16th Oct 2019

    Good point. We've sent a follow up email just to clarify and make sure they've got everything needed - no response yet but can't imagine they'd...
    Post by: Gecko, Oct 22, 2019 in forum: 2020 UK NICE ME/CFS Guideline
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