merged thread In Nature Long COVID exercise trials proposed by NIH raise alarm Advocates ask the US biomedical agency to rethink the design of...
This! The relation of these findings to ME is impossible to discern
Patient-Led Research Collaborative (PLRC) is soliciting comments in support of adding an ICD code for the symptom of PEM to the US ICD-10-CM. To...
Yes, I hear you.
I have asked but at this time, do not know when or how the draft protocol will be released for review. I've told Cochrane there are lots of...
This!
In addition to PLRC's Q&A, I'd add the following comments to questions raised above and elsewhere Will the addition of a code for the symptom of...
Patient Led Research has posted a Q&A on the proposal to add an ICD code for the symptom of PEM to the ICD-10-CM. This states that PLRC will be...
Yes, agree she is more than a bit BPS
Lisa will be presenting and available for questions. If you post or DM me the specific questions you'd like the ME orgs to answer, I will...
Thanks. I ask because Debra Buchwald, one of the authors of this letter, is presenting "Lessons Learned from Chronic Fatigue Syndrome (CFS)" at...
Does anyone know if this article was ever published anywhere? I haven't been able to find it.
Thanks for sharing, @RedFox. It's very helpful to see what groups like this are actually saying to their patients.
Is there not a potential danger that the Long COVID patient will never have their PEM recognized - or even their ME/CFS - and then be told to go...
All of the historical records coded with R53.82 since the ICD-10-CM was implemented in 2015 will never be remapped to the G93.3n group. That is...
I am looking for articles discussing the use of the Chalder instrument. I've found this public comment submission on Chalder to NIH's ME/CFS CDE...
The items in the R53 section are fairly narrow conceptually - malaise, fatigue, malignancy related fatigue, weakness, and functional quadriplegia....
I apologize for the length of this post. Hopefully it responds to your concerns but let me know if not. You are correct, sleep issues are not in...
Yes, I've read that. These statements align with the proposal. People with Long COVID can have the symptom of PEM but not have a diagnosis of...
The only definition used in the US that did not require PEM was Fukuda. But the IOM called for Fukuda to no longer be used clinically and since...
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