The livestream difficulties are ridiculous and are making it tough to follow things. For a patient population plagued with cognitive issues it is...
Especially since they said the space was oversubscribed. I wonder how many people were at the young/new investigator meeting yesterday and what...
Sorry OMF. It's not just mobiles. Livestream isn't working on my computer.
It reminds me of the effects of ME ..... start up, work a little bit, then dead stop. [ETA - and during the dead stop (no livestream), it's like a...
It's difficult (and disheartening) for those new to the scene to understand how much of what goes on in agencies like CDC and NIH are repeats of...
Has NIH explained why this teleconference is being held 4 days after their conference on accelerating ME research? What is NIH going to convey...
I think ensuring points are covered is very important. I also think there is value in NIH hearing the important points in several submissions as...
Bump Join us tomorrow, Saturday 16 March at 4pm EST. Call info and registration: https://my.meaction.net/events/me-caregiver-support-call-march...
ME Caregiver Support Call Announcement Sorry we didn’t get a call in February. Caregiving responsibilities (including self-care) took precedence....
Meeting Agenda 3:00pm Welcome and SEC Call Overview 3:05pm Updates from CDC – Elizabeth Unger, PhD, MD Branch Chief,...
@Webdog- NICE work! Thank you very much!
For ME Caregivers only Our next call is this Saturday 26 January 2019 at 4pm ET Our calls usually have a topic though we also have time to...
Is there a website for IAFME? Is this group different from IACFSME?
Crucial word "IF" That said - I emailed to ask if caregivers can participate on behalf of patients who are too severely ill to take part by...
Full text now available (pdf has tables, figures etc): Estimating Prevalence, Demographics, and Costs of ME/CFS Using Large Scale Medical Claims...
Another article (from today) about Watson and his views:...
New documentary explores the 'complexities and contradictions' of James Watson PBS is premiering a new documentary tonight [2 Jan 2019] about...
It also seems that in order to get accurate prevalence figures, the uninsured have to be taken into account (which the study cannot do). That's in...
(I am quite fuzzy-headed at the moment and hope this is somewhat understandable) I agree that if these numbers rely on GP diagnoses, it is likely...
ME Caregiver Support Call Saturday 27 October 2018 TIME: 4pm (ET) Call registration link:...
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