I noticed that also. Many of the citations seem quite old. Though I think I saw NICE 2018 and a 2015 article by Crawley. (Not that those indicate...
IF there were any basis to this rumor the researchers would have violated many ethical and scientific norms, as well as having questionable...
August 2018 ME Caregiver Support Call Announcement Calls are open to caregivers (spouses, parents, siblings, partners, etc) of people with ME so...
It's interesting you and others find cognitive symptoms resolve easier/quicker. That is definitely NOT the case in our household where it can...
Is anyone else bothered by " He worked there for 16 years, analyzing thousands of tobacco control laws for a national database, until his chronic...
Jennie Spotila has an important post on 2018 NIH funding. http://occupyme.net/2018/07/30/how-much-will-nih-spend-in-2018/
This article by Rowe discusses 3 of his patients with ME and cervical spinal stenosis https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5796598/ But...
@JenB - The attached may have some ideas for you. While this is not about policies per se, it is about what homebound/bedbound patients might find...
I can't find the names of medical professionals or researchers associated with this. The title of the petition says it is PwME4ICC. All I can...
JULY call announcement ME Caregiver Support Call (July) Our next call will be on Saturday 28 July 2018. We invite caregivers (spouses, parents,...
Thank you Miriam Tucker!
@Starlight - I understand having waited a LONG time for even this much and wanting it to be better than it is. I am not sure where Faith Newton...
@Webdog I hear you! I have been waiting and waiting for these pages... I am glad you think they are an improvement. :)
@Webdog - fwiw - the lag time between CDC developing (any) material and it being approved and posted is really lengthy so while it would have been...
re ranks of reanalysis paper: As well it should be!
Update During our June call let’s talk about: Who are the most understanding people in your lives? and What is the most surprising/nicest...
@dave30th - I can't thank you enough for this (and all that you do for us)!
@Trish - yes, the therapy involves stretching. My understanding is that for at least some patients general function (cognitive and physical)...
@adambeyoncelowe - Rowe is not a proponent of GET. The multimodal therapy he refers to begins with passive straight leg raises. At this stage the...
June Caregivers Call Announcement Our next call is Saturday 23 June 2018 at 4pm (EDT) We invite caregivers (spouses, parents, siblings,...
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