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  1. Denise
    Post

    ME Caregivers Connect!

    (Sorry for the short notice!) MEAction Caregiver Support Call - May We invite caregivers of people with ME (spouses, parents, siblings,...
    Post by: Denise, May 18, 2018 in forum: Caregiver support
  2. Denise
    Post

    USA Centers for Disease Control (CDC) news (including ME/CFS Stakeholder Engagement and Communication Calls) - next call 4 Dec 2024

    @Webdog - I suppose it's partly a question of one's definition of recovery.... The only 3 references listed in her slides were the pediatric...
    Post by: Denise, May 14, 2018 in forum: News from organisations
  3. Denise
    Post

    Adolescent recovery

    What is the definition of recovery?
    Post by: Denise, May 4, 2018 in forum: ME/CFS research
  4. Denise
    Post

    USA Centers for Disease Control (CDC) news (including ME/CFS Stakeholder Engagement and Communication Calls) - next call 4 Dec 2024

    If you are on the CDC email list but did not receive the notice pasted above, I think it'd be good to let CDC know that. MECFSSEC@cdc.gov (use...
    Post by: Denise, Apr 30, 2018 in forum: News from organisations
  5. Denise
    Post

    USA Centers for Disease Control (CDC) news (including ME/CFS Stakeholder Engagement and Communication Calls) - next call 4 Dec 2024

    Hi, I don't think I have seen this posted elsewhere but please remove (or let me know how to do so) if appropriate: May 10, 2018 3:00 pm - 4:00...
    Post by: Denise, Apr 30, 2018 in forum: News from organisations
  6. Denise
    Post

    ME Caregivers Connect!

    MEAction Caregiver Support Call (21 April 2018) We invite caregivers (spouses, parents, siblings, partners, etc) of people with ME to join us for...
    Post by: Denise, Apr 14, 2018 in forum: Caregiver support
  7. Denise
    Post

    ME Caregivers Connect!

    Thanks @Skycloud ! @Kafka - please DM me.
    Post by: Denise, Apr 12, 2018 in forum: Caregiver support
  8. Denise
    Post

    ME Research UK acceptance of Fukuda/CDC definition being used in their funded research

    I think Fukuda needs to go ASAP because it doesn't require PEM. For me, an ME definition has to require PEM and in the definition, PEM must be...
    Post by: Denise, Apr 2, 2018 in forum: General ME/CFS news
  9. Denise
    Post

    Solicitation for Applications from Individuals Interested in Being Appointed to the Chronic Fatigue Syndrome Advisory Committee

    Tobe clear - this is a notice that will go live sometime (soon?). But it'd be good for people to be preparing to apply.
    Post by: Denise, Mar 21, 2018 in forum: General ME/CFS news
  10. Denise
    Thread

    ME Caregivers Connect!

    #MEAction Caregiver Support Call ME Caregivers Connect! We invite caregivers (spouses, parents, siblings, partners, etc) of people with ME to...
    Thread by: Denise, Mar 18, 2018, 13 replies, in forum: Caregiver support
  11. Denise
    Post

    Association of chronic fatigue syndrome with premature telomere attrition (2018) Unger et al

    @Trish - it's worth keeping in mind that this study used Fukuda and if I am not mistaken went further and used the Reeves criteria, so it is...
    Post by: Denise, Mar 1, 2018 in forum: ME/CFS research
  12. Denise
    Post

    Trial of CT38 for ME/CFS by Cortene Inc.: big claims being made...

    In looking at changes in cerebral spinal fluid, Baraniuk found "The changes in brain chemistry — observed in levels of miRNAs that turn protein...
    Post by: Denise, Feb 9, 2018 in forum: ME/CFS research
  13. Denise
    Post

    Flushing in hands and feet

    @Billt -is it something like what's described here?
    Post by: Denise, Feb 8, 2018 in forum: Hypersensitivity and Intolerance Reactions
  14. Denise
    Post

    Childhood sleep and adolescent CFS/ME: evidence of associations in a UK birth cohort (2018) Crawley et al.

    So the problem stems from not sleeping enough when younger??? R i i i i i ght.
    Post by: Denise, Feb 6, 2018 in forum: ME/CFS research
  15. Denise
    Post

    Wyller: Incorrect information about CFS (ME-debate in journal for Norwegian psychologists)

    So "Recovery Network" is limited to people who have had CBT/LP/similar. How do they assess what patients had before the "treatment"? What is...
    Post by: Denise, Feb 6, 2018 in forum: Psychosomatic news - ME/CFS and Long Covid
  16. Denise
    Post

    Improvement of severe myalgic encephalomyelitis/chronic fatigue syndrome symptoms following surgical treatment of cervical spinal stenosis, 2018, Rowe

    To clarify- the PR thread was about the 2016 IACFSME poster http://iacfsme.org/ME-CFS-Primer-Education/News/IACFSME-2016-Program.aspx page 121...
    Post by: Denise, Feb 5, 2018 in forum: ME/CFS research
  17. Denise
    Thread

    Article - Testosterone might protect males from autoimmune disorder?

    Male-specific IL-33 expression regulates sex-dimorphic EAE susceptibility Abigail E. Russi, Mark E. Ebel, Yuchen Yang and Melissa A. Brown PNAS...
    Thread by: Denise, Feb 3, 2018, 0 replies, in forum: Other health news and research
  18. Denise
    Post

    CFS in Chinese middle-school students, 2018, Shi et al

    This uses Fukuda and the "Chaldea [sic] fatigue scale" as well as the SF-36 for physical function.The reference for the depression scale is an...
    Post by: Denise, Jan 27, 2018 in forum: General ME/CFS news
  19. Denise
    Post

    Is the NIH/CDC going to use the right PEM definition for all their future research? Do patients need to act? Deadline 31 Jan

    @Leonard Jason - question #27 asks about precipitants of abnormal response including positional changes. In parentheses it says "...from the...
    Post by: Denise, Jan 23, 2018 in forum: ME/CFS research news
  20. Denise
    Post

    Is the NIH/CDC going to use the right PEM definition for all their future research? Do patients need to act? Deadline 31 Jan

    @Mij - generally what I have noticed about the immediate onset is the pwME being immediately rendered monosyllabic (or only able to grunt) and...
    Post by: Denise, Jan 23, 2018 in forum: ME/CFS research news
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