I was referring to the "Life is living in acceptance of all the mess and vulnerability and illness and tiredness and confusion" bit mostly. I’m...
"But I have seen clearly that life is not to sort yourself out and wait for the time you are complete and ready. Life is living in acceptance of...
I wrote earlier that alcohol doesn't affect my ME symptoms although I can't drink as much anymore which I put down to aging. That's all true but...
Until the last couple of years I have always done some sort of exercise in addition to the usual house and garden activity. Years ago it was...
Alcohol makes no difference to my ME symptoms. I can't drink as much as I used to for the same effect but I put that down to aging.
My sensation exactly. I feel separated from the actual world that I know is just 'over there'. It's so near and yet so far., like trying to grab a...
After the very bad cold or perhaps flu which precipitated me into worse ME, I haven't had anything more than a vague sniffle. After that bad one,...
Neither works for me but I've discovered that paracetamol has a synergistic effect with codeine, making it more effective. I know this because I...
It never ceases to amaze me how easy it is to be tricked into conflating physical and emotional states. When you feel happy, physical problems are...
I definitely agree with this.
Every time I come across Ed Yong he impresses me more. What I particularly like about this talk is that he describes, without ever milking the...
I've been vaguely aware of this effect in many physical and cognitive ways for a long time and I've told myself it's due to getting old but about...
I can't pinpoint an infection or starting point because it was so long ago (about 55 years) but maybe 20 years after I started feeling 'not quite...
This article is spot on imo. Claiming that they won't wear masks now in an indoor space full of people, despite risking long covid, because it...
Definitely PEM and hunger are related for me and rubbish food is what I crave. Once in a while, maybe once a month at the most, I give in to it...
Maybe once a week I am completely overcome by the need to lie flat, completely flat on a solid floor, not a soft bed. And definitely not with my...
Yes. It is absolutely crucial to play your cards very close to your chest in this stupid game.
I have a similar issue with longstanding hoarseness, periods of throat clearing, and a 'tired' voice which is worse when I actually am tired. I...
It's very unfortunate that there seems to be a general misconception that striving for excellence (the man who was a personal trainer for...
Thank you for your terrific blogs @ME/CFS Skeptic and especially for this one. When I read this paragraph I almost burst into tears. I've been...
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