I’m sure they will but it would be quite amusing and potentially helpful for us if they didn’t. Peter Barry et al can’t be silenced in the way we...
I have been in a similar position. I only managed to read parts of the Delivery Plan and jotted down a few notes. However, one positive of the...
If a test couldn’t differentiate between someone with ME/CFS and someone who had similar activity levels for a different reason, I wouldn’t...
Jo, I think I sort of understand your point but I’m not sure I agree. First, I’m sure I was not alone in struggling to accept the accuracy of my...
Pleased that AfME have signed it. Have Forward ME, ME Research UK, Invest in ME Research, the Irish ME/CFS Association, and OMF been contacted?...
Yes, it’s great to have people like this on our side. One positive of all this is that they must be fully aware of what we’ve been up against now....
I’ve just received the following reply from NICE: “On 20 Sep 2023, at 15:07, National Institute for Health and Care Excellence (NICE)...
Thanks for your perseverance @MBailey and to those who helped. I agree with the content of the original letter but I think the language in the...
It would be interesting to know which stakeholders have been given updates from whom and on what basis. Would it be worth replying to BACME to...
Thanks, Brian. Really good article and fascinating story. Can we share the gift link on social media? Love this line: “For Hwang, developing a...
Interesting to note that Metformin is reported to suppress ER stress. See: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5826674/# From the link...
Just started trying to make my way through the paper (thanks @B_V). One thing jumps out at me. Hwang et al write: “WASF3 Tg soleus muscle, with...
I’ve just emailed NICE to ask where and when its “detailed response” to the JNNP article will be published. Will post if I receive a reply.
From the NIH article above: “To better understand the role of WASF3, the team engineered mice to produce excess WASF3. They found that, similar...
I’m a bit surprised that none of the major UK ME/CFS charities are listed as signatories. Have they been asked if they would like to support it?
I will try but I’m not sure I’m going to be able to send an individual response. Is anyone working on a collective one? If I don’t manage to send...
I think they should have had 2 extra documents: 1) A concise document which accurately summarised the contents of the main Delivery Plan...
Discussion split from discussion of an NIH webinar where there was a presentation of a forthcoming Bergquist CSF proteomics study USA: NIH...
Apologies if I’m being dim but I don’t understand what you mean by the original cause of malaise. Can you explain?
Charles Shepherd (medical adviser to the ME Association) had a letter published on the BMJ website in response to its report about the JNNP...
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