I think this would be a good idea. Or perhaps an open letter drafted by S4ME member that anyone could sign on one of the petition platforms. I was...
I like to think that if I hadn’t been so unwell for so long I would be sufficiently well-read to understand more of your cultural references...
I may be atypical but I’ve never had this sensation. I get terrible all over pain but I never describe it as muscle pain as such, and it feels...
Ha! :thumbsdown: Actually, I was referring to my distinctive art nouveau garden gate, and I was wondering if such taste may be a common feature of...
@Jonathan Edwards Just giving you a nudge in case you didn’t see these questions.
As some of you may have seen on Graham’s thread, I’ve been playing with ChatGPT for the first time today. Out of interest I asked it to write 500...
ME Research UK summary: https://www.meresearch.org.uk/research/brainstem-volume-changes-in-me-cfs-and-long-covid-patients/ ME Research UK on...
I haven’t actually read the article – couldn’t face it. Those quotes are distressing and confirm my fears. I may unwatch this thread as following...
Thanks for your reply @Esther12. Not feeling up to penning a long reply but I just wanted to add that even when I don’t agree with you I...
It is a sad fact of life that people who promote views that others strongly disagree with are often subjected to abuse and threats that the vast...
Thanks again to Simon for asking the questions that I was struggling to formulate. If I’m understanding correctly, it seems like it would be bad...
Hope is what keeps me going too. For the 30+ years that I’ve been unwell, I don’t think I would have been able to continue without hope of...
I’d love to be cancelled like Paul Garner – and all the other high profile people one is constantly hearing from in the media about how they are...
I emailed Hilda on 14 February but I’ve not received a reply. I will post any reply here if I get one and she consents – unless she posts a reply...
Thanks I think this may have been the paper he was referring to, although there may be others: Loss of capacity to recover from acidosis on...
Jo, If ME/CFS was a signalling problem would that be something that would be detectable in the blood as with TNF? Or are there other types of...
Your English is excellent IMO, but if you would like to send me a pm with a draft (or post on here) I would be very happy to edit it for you. No...
Good spot, Grigor. Would you consider submitting this as a letter for publication in Nature correspondence? My recollection is that letters for...
@Jonathan Edwards Any thoughts on this? And/or more generally on this paper and the other studies which suggest there may be endothelial dysfunction?
The journalist and broadcaster John Diamond (husband of Nigella Lawson) wrote a lot about this after he was diagnosed with the cancer that killed...
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