The FOI from after the Nice guidelines showing for example someone getting in contact with Gillian Leng who all we technically know is they were...
Am I remembering rightly that was it you who went thru then saying they didn’t diagnose those with LC with me/cfs ‘because of the figures/not...
Sounds like someone who ‘does what they want’ I find this outright saying they have ‘beliefs’ from some bps character’s extraordinary- because...
Well I always suspected the purpose of the 'update' might only have been to be able say/give some, any, excuse for leaving something flawed up in...
I )am trying to) think back to the CC getting involved with the Very Reverend Percy thing and it was the money being spent on legal fees I...
I’ve found the following paper which used a similar combo (not valacyclovir but similar) in fibromyalgia...
Isn’t the celecoxib + placebo arm 3 acting as the baseline /control so that it will be subtracted from the two arms where are are different...
Sounds like another classic krypton factor filter I know a few people with severe IBDs and they can kill. Like many conditions there are...
Telling people to chill out about not being able to rely on their own bowels not to cause huge pain and fecal incontinence they can’t control and...
Can you think of anything more cruel or absurd to suggest as an issue ‘ just needs some mind training ‘? So delaying both proper support and...
I get the thirst, muscle twitches and pain as part of PEM particularly following more physical stuff which can include having legs down or talking...
I wonder if they’ve noticed the contrast between the two images (the black woman isn’t a photo - do they have many images of /patients of various...
So the 2021 Nice guideline underlines how important the longest time period for follow up is ie the long term IS the effect on the illness and...
I seem to remember a news article in the times I think where Anthony David in an article fir a book probably entitled mysteries or something in...
Yeah just seen a video on admissions interviews talking about how one might come up with scenarios where all the conditions are false but the...
Are they actually’bought out’ of their uni contract like eg a research project would do for x % of their time fir x months etc?
given it’s Xmas and new year coming up it seems a good time to have a positive thing to disseminate I don’t know whether there is any done thing...
Agreed
Sounds a sensible next step in order to stop then making it ‘just the cfs people don’t like their outcome’ to look at any patterns I’m curious...
And if there is no new research then the need to withdraw is even more required given the excuse for not withdrawing was never there anyway just...
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