I see what they’ve done it’s the old separation as a collection of symptoms ‘fatigue in’ then measure it as a short term phenomenon except for...
I don’t think you understand PEM I’d be more impressed if you were curious to learn about it and learn what M.E./cfs is I’m not sure anyone...
There it is again :jawdrop:! This time ‘many patients’ as your scientific, considered thought in the very comment you post straight after you...
It’s reminded me to look into out of curiosity whether there is any archive of sales spiels and brochures for things like curing ulcers from the...
The battle seems to be with these edicts that are inappropriately and inaccurately learnt as ‘all’ and ‘noone’ like ‘there is no illness that...
yes and no - whoever it is that is funded to do a study we need to remember that such funding tends to be a rolling stone in their existence. Just...
But if you are using a smaller number of samples then you need to/should be ensuring that is both representative of the wider population you...
Agreed - it would be useful perhaps for clarity to state it is a treatment for those with the condition of 'fear of exercise', which might well be...
Oh dear that must have been how I read the interaction. I've pasted the trail of that conversation below - happy for you to correct and explain?...
PACE cost £5m remember all the way back in the early 2000s. the cost of offering a course of 'brain retraining' [or insert other term for...
I don't know. Both ME/CFS and the flu are illnesses that underlay the various symptoms someone gets with them and can be exacerbated by rough...
I'm not sure that anything ends the beliefs of these individuals, and @Friendswithme has a point that these days given how much money has been...
You are correct it is a straight Orwellian tactic the bps colonising all words that patients would need in order to change them into meaning...
It’s bigotry about social acceptance only being achieved if people learn to lie and hide their disability m we’ve all lived that tyranny and it’s...
Just another shifty tactic of denying/removing their existence by renaming something with rights and meaning to something that is a word which is...
It’s trickery as well I’ve come to realise - another method of coercion and silencing - to trick people that probably wouldn’t never use that term...
I think this last bit is the aim . But it always has been. In the most unloved cruel way possible. The work bs is a cover they know isn’t...
And fear and the idea of 'subconscious fear' nonsense (I say this as someone from a psychology background offended by someone trashing the subject...
indeed. Claim it is thousands recovered but at best a few actual 'testimonials' (in commas as many - of the ones posted, because there aren't many...
I see where we might be finding confusion / cross purposes ... can I ask do you have ME/CFS or/and do/did you have another condition that is...
Separate names with a comma.