that same issue of bps and backe being allowed to treat ‘anything but me/cfs’ in such a way that they harm pwme just in case they don’t have it....
Watched an interview on a totally different topic tonight for a short time and saw the phrase “we need to remember that ignorance is not a crime...
Sadly for us we do look at them - hence why our comments tend to be on details within them im pretty wary about the lack of examples provided...
But none of them have been methodologically sound? Happy for you to post one that is here
1. I can’t understand fully - it was a response to the point on unblinded subjective studies being a problem . Yet you’ve appeared to suggest the...
It would be very worrying to suggest trials of bedbound patients without mentioning the ethics given a big problem with bps is many of those...
we don't quote these classics enough as coercion and social pressure is used to an extreme extent in wangling 'results' from CFS people -...
or at least have their gravy train turned off? and the narrative of the patients vindicated (so those made more severe by it are no longer...
@Hutan also made the interesting point a while back which I don't know whether it was resolved that do we define length of PEM as the length of...
@Chestnut tree and @Kitty I think were replying to the point that if people are changing PEM to include 'non-delayed' then there needs to be a new...
OI is a hard one for me. But I get leg symptoms that are very PEM distinctive and come on exactly 36hrs after legs being down eg for an hr for an...
PS I suspect, horribly, most pwme (we just don't hear about because of this) are trapped in some dystopian hell where they are surrounded, at...
I think we absolutely cannot ignore that because of what we are battling against with the cognitive dissonance/status quo way of thinking that has...
it's important because it is the aspect that directly relates to the can't issue and seems to be being directly and deliberately made ambiguous by...
Tetris - that’s what it kind of reminds me of. And how quickly you get to the rounds where you are hardly in control of stopping it all mounting...
Nailed one important issue there. Robbing Peter to pay Paul/APR technically does it but not quite conveying the severity of the situation yet. I...
:heart:
Thanks - can I assume what is fatigue syndrome in this translation is exhaustion disorder?
Yes it’s hilarious but not isn’t it. If it is a medical clinic then appointment might be a few times a year. Certain aspects of the blood will...
Could the pattern that the systems that have tracked it and know in future a recipient could track it back ie legal case possible have banned...
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