I haven't got the ability to find a different thread for this right now (and there are bits, such as where they mention talking therapy 'to...
I don’t know the details of it well but it sounds targeted at energy limiting conditions and illnesses and also feels like it shows a lack of...
I think the lack of vocab and clarity doesn’t help actually but yes it is a big job to think through due to the experience involved and thinking...
Yeah I’m more remarking on my lack of good name for it - I think I started using that because of the need to explain ‘and now this ends’ and...
I think back to when I was younger and when I wasn’t in PEM outsiders might have thought my function in the sense of going on a night out or...
It’s good to see these limitations/issues/complexities not just being talked about, but the detail of what state people were in and why annotated...
That’s interesting because that’s the part I tend to call ‘cognitive fatigue’ - noting the pain part is obviously an exception in not fitting...
I thought that earlier on something. Basically it isn’t just the journey but if I had to set an alarm (as well as all the packing etc) just that...
And if it is subjective measures there is the issue of the wired thing vs people answering literally on how they feel (eg we know we feel hyper...
I’m actually quite/more worried about how they saw delayed PEM and then explained it away assuming it must be an external factor without even...
How many though have ever definitely had instant PEM? I get fariguability ie tired during a task I think we need to be very sure I’m afraid...
Yes this situation really needs some careful thought because it is a major issue they don’t seem to get the cumulative either so focus on...
Heck could we even add in a line that uses better language to not the issue of papers that are actually acting as Trojan horses to spread stigma...
That last one on ethical considerations is the topic that calls out to me as most useful and fruitful in it really should be heard if done well...
3. The people behind it and their likely reaction not being at a similar level to the norm in the profession so people I guess at all levels, not...
Good letter pointing out important problems such as straw man and inversion of issues and claiming things in the name of ‘reducing stigma’ when...
Isn’t this like the issue noted in Jonathan’s testimony for the Nice guideline - they’ve proved the therapy/theiry/ideology is wrong and doesn’t...
Is that central fatigue they are measuring or a temporary pause after a short run? ‘How brain reacts to a run in healthy volunteers for a 3km run’...
And that the stuff like think positive or trying sleep hygiene (leading to no sleep and worse insomnia by banning naps when issues are caused by...
I struggle with contrast most so for example don’t watch tv in a dimmed or dark room , whilst many well people enjoy that for a film (although it...
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