Think this is their version of "minor, moderate, severe" -- it's really "very, very minor; minor; and moderate". Severe is still missing. I...
He did as close to zero carbs as he could get. I do few carbs, and I did as close to zero as I could get too, at one point. I think he's still...
Saying this stuff outright and so plainly... I've seen a lot of change in the short time since I was diagnosed.
Since my friend isn't on S4ME, I will add his two cents: Before ME, he did half-marathons and biked miles and miles most days. Reading through...
B/c they have no idea. There are zero studies on what kind of exercise, with what intensity, for what patients w/what risks. W/current research,...
Ah, I see. Well, there does seem to be a factsheet for them, anyway:...
There is a section on pediatric/childhood ME. From that section: Honestly the first and last paragraph contradict! Did they mean to remove...
Sounds like crisis management, maybe? Some paradigm she might've known before she got sick.
I've got a little tear in my eye.
Great line.
Big entities like CDC get in trouble for recommending treatments for which there is little evidence -- and by "little evidence" I mean not a...
This is a pet peeve of mine. It implies that part of them really still believes positivity is the answer. Or -- from another angle, I suppose --...
Yeah, I remember describing that as a child and having people wave me off. OI is for sure a lifelong thing for me, though when I was a kid it was...
Whoooboy. Especially with slow onset cases, I feel like the likelihood is high. I remember thinking I had a serious problem with...
I'm going to carefully frame this as an "I expect that..." rather than an "I know that..." But I expect that those white matter hyperintensities...
Me, too; but then I was also told that... "it could be a kind of... pre-MS?" This was early on in the diagnostic process. I goggled. Then I...
Always give high doses of B vitamins a go (if you can tolerate, of course, low-but-slow, all of that). I forgot about that internal buzzing...
They ran me through the wringer at Mayo. According to sweat pressor test, nerve impulses are not, in fact, travelling all the way down the leg....
maybe I'll give that a try... My 'sudden sitting' is turning into actually falling down. Left side weaker than right... frustrating,...
Whoa! I may have been fit, but I remember doing an 8-mile bike ride as a kid (13-km) and being pretty darned winded! Sore the next day, too....
Separate names with a comma.
