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  1. Dolphin
    Post

    USA: News from the Bateman Horne Center

    From Facebook: Long COVID & ME/CFS in Children & Adolescents Long COVID isn't just a problem for adults—children and teens are also...
    Post by: Dolphin, Apr 6, 2025 in forum: News from organisations
  2. Dolphin
    Post

    USA: News from the Bateman Horne Center

    From Facebook: Part 2: Understanding Pediatric Long COVID & ME/CFS Amy Mooney, MS, OTR/L, dives into the impact of Long COVID and ME/CFS in...
    Post by: Dolphin, Apr 6, 2025 in forum: News from organisations
  3. Dolphin
    Post

    Works of fiction where characters have ME/CFS

    I haven't listened to this so not recommending it per se. https://thelonelycrowd.org/2025/04/03/read-by-the-author-take-away-by-alan-mccormick/...
    Post by: Dolphin, Apr 5, 2025 in forum: General ME/CFS discussion
  4. Dolphin
    Post

    United Kingdom: ME Association news

    A pity their help was required to help the trial reach its recruitment target. But not the worst use of funds in my opinion. And good to see them...
    Post by: Dolphin, Apr 5, 2025 in forum: News from organisations
  5. Dolphin
    Post

    COFFI - The international collaborative on fatigue following infection

    Posted online on April 3: [MEDIA] COFFI Consumer-Researcher Online Seminar IV Where lived experience and science meet Persistent symptoms after...
    Post by: Dolphin, Apr 5, 2025 in forum: News from organisations
  6. Dolphin
    Thread

    ‘A gift and a curse’: the benefits and limitations of self-tracking Long COVID, 2025, Jayadeva & Lupton

    https://www.tandfonline.com/doi/pdf/10.1080/1369118X.2025.2483834 Sazana Jayadeva & Deborah Lupton (01 Apr 2025): ‘A gift and a curse’: the...
    Thread by: Dolphin, Apr 5, 2025, 6 replies, in forum: Long Covid research
  7. Dolphin
    Thread

    Cripping the Co-Design of Pacing Technologies For Energy-Limiting Conditions, 2025, Homewood

    https://www.researchgate.net/profile/Sarah-Homewood/publication/390335389_Cripping_the_Co-Design_of_Pacing_Technologies_For_Energy-Limiting_Conditi...
    Thread by: Dolphin, Apr 5, 2025, 2 replies, in forum: ME/CFS research
  8. Dolphin
    Post

    Reactivated EBV, HHV6, HAdV in Sputum from ME/CFS Patients: Are autoAbs to IFN-I Impairing Antiviral Immunity?, 2025, Hannestad et al.

    ME Research UK: Prolonged exposure to viral infections, such as Epstein Barr Virus which causes glandular fever, could be linked to immune...
    Post by: Dolphin, Apr 4, 2025 in forum: ME/CFS research
  9. Dolphin
    Post

    Opinion Under-Served Groups and [ME] Research Workshop; Multiple Barriers, 2025, Bolton, Chew-Graham, van Marwijk

    ME Research UK: Observations from an online workshop on ‘ME research and underserved groups’, have been published. The workshop was organised by...
    Post by: Dolphin, Apr 4, 2025 in forum: ME/CFS research
  10. Dolphin
    Post

    Review Key Pathophysiological Role of Skeletal Muscle Disturbance in Post COVID and ME/CFS: Accumulated Evidence, Scheibenbogen et al, 2024

    ME Research UK: Former ME Research UK-funded researcher Prof. Dr Carmen Scheibenbogen and Prof. Dr Klaus Wirth summarised muscle research on...
    Post by: Dolphin, Apr 4, 2025 in forum: ME/CFS research
  11. Dolphin
    Thread

    Evaluation of T cell dysfunction in Post Acute Infection Syndromes, 2025, McCracken

    Evaluation of T cell dysfunction in Post Acute Infection Syndromes Nigel McCracken, Lucy Buckingham, and Clément Monteil Virax Biolabs, BioCity...
    Thread by: Dolphin, Apr 3, 2025, 2 replies, in forum: ME/CFS research
  12. Dolphin
    Post

    Discriminating Myalgic Encephalomyelitis/Chronic Fatigue Syndrome and comorbid conditions using metabolomics in UK Biobank, 2024, Huang et al

    https://pursuit.unimelb.edu.au/articles/We-dont-yet-know-what-causes-chronic-fatigue-syndrome,-but-were-improving-diagnosis Health & Medicine...
    Post by: Dolphin, Apr 3, 2025 in forum: ME/CFS research
  13. Dolphin
    Post

    Long COVID after SARS-CoV-2 during pregnancy in the United States, 2025, Zang et al.

    https://www.eurekalert.org/news-releases/1078926 News Release 1-Apr-2025 Pregnancy may reduce long COVID risk Peer-Reviewed Publication Weill...
    Post by: Dolphin, Apr 3, 2025 in forum: Long Covid research
  14. Dolphin
    Post

    The PACE Trial’s GET Manual for Therapists Exposes the Fixed Incremental Nature of Graded Exercise Therapy for ME/CFS, 2025, Vink et al

    Okay. By the way, my comments weren't a criticism: the point of them was to highlight how difficult and demanding the peer-review process can be.
    Post by: Dolphin, Apr 3, 2025 in forum: ME/CFS research
  15. Dolphin
    Post

    USA: News from the Bateman Horne Center

    Tuesday, April 15: Free, professionally-facilitated online support group https://batemanhornecenter.org/event/online-support-group-93/ Online...
    Post by: Dolphin, Apr 2, 2025 in forum: News from organisations
  16. Dolphin
    Post

    News from the USA, United States of America

    “Lipkin is personally donating money to help keep a small portion of the research afloat, but this barely covers a single employee and some...
    Post by: Dolphin, Apr 2, 2025 in forum: Regional news
  17. Dolphin
    Post

    The PACE Trial’s GET Manual for Therapists Exposes the Fixed Incremental Nature of Graded Exercise Therapy for ME/CFS, 2025, Vink et al

    Guessing he had challenges during the review process either with this journal or elsewhere.
    Post by: Dolphin, Apr 2, 2025 in forum: ME/CFS research
  18. Dolphin
    Post

    UK: PIP appeals - advice, recommendations?

    https://bsky.app/profile/tomkindlon.bsky.social/post/3llsbu5mhes2o
    Post by: Dolphin, Apr 2, 2025 in forum: Work, Finances and Disability Insurance
  19. Dolphin
    Post

    United Kingdom News (including UK wide, England, NI and Wales - see separate thread for news from Scotland)

    Post by: Dolphin, Apr 1, 2025 in forum: Regional news
  20. Dolphin
    Post

    News from the USA, United States of America

    Source: House of Representatives 104th General Assembly State of Illinois Date: March 28, 2025 Author: Rep. Robyn Gabel URL:...
    Post by: Dolphin, Apr 1, 2025 in forum: Regional news
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