Just for clarity: This comment quotes the the criticized leaflet, it's not an actual comment, but cites what the MEA intents to point out as...
Thank you @Dolphin and @EzzieD-- that's very helpful. Good to see so many familiar names on Bluesky. Maybe there will be a bridge to Mastodon...
There were a couple of social media accounts on ME/CFS research and advocacy, as well as more general research relevant for ME/CFS I used to...
There is another comment on Jonathan's Qeios article, by a professor of sleep medicine. https://www.qeios.com/read/WMQGBY (It's hidden as a...
Yes, even if the proposed mechanism related only to the proportion of pwLC that showed what some researchers established as (potentially)...
Also, if there was a positive effect, I think this would have still be recorded by that measure - as I think it was used already in their first...
In addition to what was already said above: Not only very little mean improvement but if I understood properly all scores still indicate...
Just thought what's said at the end of the article is important in these times, too:
Looking only only at the conclusion I would agree. Skimming the full text I found their reasoning rather confusing though. It's not clear to me...
As the full text is paywalled and it's an Elsevier publication, just a reminder that there's the option to get patient access:
Does this mean further comments on the content should better be posted on Qeios then?
Yes, huge thanks once again to Jonathan and everyone's comments. I'm late & once again apologies for not being able to read through the thread....
Not a trial but perhaps useful for a confrontation both with the negligence of the issue with using subjective outcomes in (unblindable)...
Sorry, have been writing this while new replies were posted -- so won't be able to reply but just add my last post on the 'essential' critique of...
Agree -- some of these other reasons might have helped short-term in getting awareness on the either bad or non-existent care for pwME/CFS and...
Yes. I'm just afraid "we" are still a minority who see this as it is. Thanks to a lot of work done by many people with and without ME/CFS,...
Just thought that paragraph on the Science Media Centre (SMC) deserved quoting, too:...
Not sure if its actually wrong or just not clearly worded. "The critics were right" I think is the important part. Edit: What @dave30th and...
While I agree with your suggestion on the three-versus-two-boxes, I think the bit about appealing to authority by referencing NICE is not what...
Huge thanks to @George Monbiot for this and to everyone who talked with him -- I think it's overall a good article on such a tragic cause. One...
Separate names with a comma.
