Couldn't resist to try google and found this note on a study that seems unrelated to ME/CFS: Acknowledgments "The GenROC study was originally...
As improvement occurred only several months after infusions were given I think it's unlikely that any outcomes measured an actual effect of Saline...
Ah, Thanks. Couldn't see the tweets and don't know why I thought it referred to something different. So it's that: S. Wessely, Standing up for...
Searching for a quote on the recovery treshold in PACE I only retrieved this similar quote: 1. Anyone happened to save an image of the quote?...
At least would like to add these individual endorsements to @Tom Kindlon For many more, see original thread.
Just thought this thread could do with a bump and an update -- sorry not able to do the latter myself
Thank you for commenting on Ernst's blog. Apologies, only able to skim -- but the part on Crawley caught my eye. From your comment: "Many of...
To facilitate sharing on Mastodon -- @Tom Kindlon shared this: https://disabled.social/@david@trialbyerror.org/112410350748904615 Edited for...
From the FAQ: "Yes, we will publish all the videos on our website and YouTube after the conference." https://unitetofight2024.world/faq/
Trial by Error Project Update: Berkeley's May crowdfunder reaches 25% of the goal... "This week, Pete Judo, a behavioral scientist and popular...
In Germany at least, I'm afraid, almost everyone says rehabilitation is good for almost everything. And I think after stroke and/ or certain...
Apologies, just skimmed a bit through recent posts and wondered about that Wessely reference... Not sure what you searched for regarding Wessely...
Full paper published -- open access https://bjgp.org/content/70/691/e78
Apart from what I posted above -- that the whole approach / review/ referencing seems flawed to me -- , from that graphic it's not clear to me...
Apologies not able to read others' posts ATM just thought I'll post the direct link to the recommendations graphic to facilitate discussion...
"Our recommendation for pacing (energy envelope maintenance) in severe PEM is based on a recent UK study showing that a structured pacing protocol...
From the quotes Hutan on which commented above "Several studies in ME/CFS, which is defined by severe and debilitating fatigue with no known...
Now am very exhausted just from going to the loo and other basic activities: For seven weeks, I'm not allowed to use my left leg/ stand on my left...
Was only diagnosed with this after falling badly which left my knee not only much more painful than before but also couldn't move it as I used to...
Thank you to everybody looking in detail at the paper. The statistics and other mathematical details are beyond me. Only able to skim anyway so...
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