Periodic Paralysis is a very rare condition and it is properly ‘genetic’, involving specific mutations rather than a collection of genetic...
My experiences, which I’ve discussed at length on The Other Forum, have led me to read up a bit about Periodic Paralysis. Reading more I feel...
So is this still a likelihood? Is there some sort of subset, just much smaller than expected? Or will the UCL work now be focused on more general...
In Defence of Dogs is an excellent book. Re this topic I haven’t read the full thread. I’m not sure what I think about the actual biology of...
@Skycloud yes
As a bit of an aside, Mendus is worth looking at in terms of attempting to track ups and downs. It is a Citizen Science/quantified self hobby...
Should there be a new thread with people just posting conditions which are worse with exertion, or have a delayed fatigue? I’m thinking quite...
So would we be looking for what is considered a side effect for cancer patients? It is also something that suppresses B cells, which was my...
I sort of see it the other way around. I think people who don’t have hope in recovery/remission and just keep going are stronger. I’m naturally...
But the ME fatigue doesn’t simply go by controlling the tachycardia, in my experience. POTS fatigue does but that is more immediate and feels...
My memory might be letting me down but I think this was a few years ago, before the current study. Something about people with just one gene...
Experientially ME feels autoimmune to me. For example, when my body switches to fighting a new virus I get an unusual brainfog holiday just...
I remember Nancy Klimas talking about 3 genes a few years ago, but that must have not been confirmed as we didn’t hear anything more.
My vote is it will be a pattern or collection of tests. If it was one gene I suspect it would have been found already. So interaction of several...
Not necessarily. I’m thinking of the Hornig study “We report here distinct alterations in plasma immune signatures early in the course of ME/CFS...
I saw it on Twitter from Micheal van Elzakker in this context, but when I asked him he just said google Debate Pyramid and it was there lots of...
Oh that’s actually a lot more positive than I had interpreted from the news. I’d consider being able to treat a third of pwme (or people...
I’ve woken up thinking about this (well I woke due to throat constriction and I’m now dwelling on it). It’s really winded me. Yes my partner’s...
This is a useful guide both ways. We need to stick to the top 3 layers. Noticeable that the level of debate back is far lower ;) [IMG]
@MErmaid my dog looks at me like I’ve no idea what I’m doing! Bet she’s longing to recommend something! Probably daily walks ;) I think this...
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