I’m guessing nothing controversial/radical on funding will be announced until after the CMRC conference as a possible way to explain the lack of...
I also think the U.K. nhs approach is part of the reason why the still functioning - working , studying socialising and their family and friends...
This is potentially huge. If the ring fenced funding mentioned is being asked of the MRC that's a massive u turn by the main two collaboration...
I find this whole non medical approach patronising infantilising. Colour in your diaries, let’s pretend It’s all about “ management “ we are not...
I think it’s generally good. I’m impressed with the norway m.e association for engaging with this and this follows their really good report on...
I will try to put some extracts Read more:...
https://www.newscientist.com/article/mg24532710-700-ancient-viruses-buried-in-our-dna-may-reawaken-and-cause-illness/ Mentions avindra nath &...
Well if you look at early minutes the attendees are like forward ME ones, not just mea & afme, about 10-15 2006-7 minutes all list attendees...
Here, although it’s membership rather than attendees of one meeting so not like for like, apologise. I’ve added an amendment. The sad thing I...
This sums uP well how the severely affected feel about research situation. I hope that this need And urgency is conveyed to the MPs at the meeting...
I really wonder if this isn’t just for show - in the CMRC are now so down with the patients or as if there’s really loads of research we can do we...
How awful. It’s rare but affects 2-3%? It’s treatment is simple walking & CBT.
I saw this the other day regarding brain stem research to date in m.e, seems quite a good review by cort Johnson...
Really important. I’ve no idea if similar has been done in CFS yet but I am constantly experiencing a feeling of having a sickly, neurological...
Action for m.e seem to have no desire for real progress and improvement. They bundled the APPG announcement in with another, put up the wrong link...
Well as a lay person I think that it Looks fantastic. I just hope they can get funding. I think that Michael VanElzakker is one of the...
From what I’ve seen in other areas they can do inquiries and the autism one was pretty important in getting a national strategy for autism set up....
I haven’t read the full report so can’t comment on the details but if that was the best he could do, afaic it still had weight as an inquiry and...
Re past APPGs stance & activity on research period 2000-2010. The bits that stood out for me from their minutes and reports were: my bold. I...
Apparently no one from HoL but minutes are still awaited on. On Facebook an enquiry was made regarding APPG minutes and next meeting and we were...
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