I hope that the APPG doesn’t confine itself to just these matters. I note the need for resources for autism mentioned but not for m.e. I saw...
Those figures were from 2006 so a bit different time frame
Can anyone account for all that money. It’s different to the figures we use. In 2017-18 on the bbc news round (which unfortunately didn’t...
If you search there was a discussion with lots of comments on The MEA association facebook page fairly recently
That’s fair enough, and I see they have nearly 2000 signatures so there’s obviously support. I personally think meaction Uk have made nice their...
Tbh i’m not sure about This, wasn’t there some other similar NICE activism last year ? As far as I can see the “process” with the people long ago...
The stunning scenery and research coverage managed to make the patient narratives less depressing so the film can pack punches whilst being widely...
Well I’ve gone without food three days but not through choice and received no benefits
It’s extremely interesting to read thanks. I was far less involved in things back then, although already very severely affected and it’s actually...
The jobs gone to Tony Britton btw, their Retired former content & media manager, with background as local journalist from what I recall.
Good article. The drs sound poor in NZ. My downward spiral was very similar. Yet another person harmed by being convinced, wrongly, that the...
thankyou. are you in the pag or has someone from the CMRC or insider charity told you that? It has been kind of intimated for a while that we are...
I dislike the short hand Of the minutes and lack of who’s who for patients. The genome study seems very behind the scenes and we are Waiting on...
Kings have a new research project, something to do with the arts as useful for illness, dance song etc I think that pariante is head of that. Not...
hello, Why do you think your main activists are bedridden , given bedridden patients make up only a portion of the 25% severe who are already a...
We need philanthropists and. Innovation in our field. A few weeks ago bbc covered a story where scientists had agreed to step in and create a...
https://lymediseaseuk.com/2019/05/22/rcgp-gp-lyme-disease-toolkit-launches/ seems quite nuanced.
Is there any info as to the combined total of funds for these seed studies? They look impressive and it’s nice to see a range and increase in number.
I’m not sure any Parliamentary changes are really a big loss as there wasn’t an organised parliamentary effort after the HoC debate, there isn’t...
Thanks. I looked at the nacul study and was frustrated it didn’t specifically mention severity categories but your analysis of the data is very...
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