I don’t understand how these people can continue presenting our avoidance of activity as somehow a fault and a targetable behavioural treatment...
Such a shame they have us so wrong. So clever and convenient of course for our adversaries to be able to lump us in with the loons, the flat...
When I’m at my worst and can’t speak or function , hardly aware, can’t focus etc I very much feel like I have a neurological hole in the back...
I like the description they use, given there’s debate on this.
I just saw an advert regarding GP training “Spotlight project” day in Cambridge on POTS , LYME etc which is of mild interest given the concerns...
Well seeings that was mainly aimed at me I will refrain from further comment. I haven’t changed my views but see that on here they are not shared....
That was for one grant for the mark Davis T cell research, not the whole nih contribution. It is sizeable in general research terms, ie in...
Ok but the Australian sum is larger, if you Allow for their smaller population, Norway same. They are showing that RFF at this time possible and...
I will be brief as I’ve expended too much energy on this 1) the 8 years is the wait 2013- 2021. 7 years maybe if starts 2020. It is the time...
If we eventually get money In 2020-21 I would say We as patients couldn’t afford 8 years of CMRC methods to get this 1 picked and only project...
B i’m not sure which 2 countries you mean there is money sloshing about in versus ours , do you mean in USA equivalent terms or Australia...
I don’t really understand the hype around this to justify the use of language I don’t understand how this could be a press release or £200 k seen...
I would have liked them to reference the FINE trial, sister to PACE, otherwise they’re just ignoring the severe it seems to me. FINE AFAIK had...
https://hubs.ly/H0lhw1C0 given that using the media to change perceptions about our illness has been the focus of quite a lot of campaigning, i...
I have chronic nasal congestion that directly correlates with my M.E. another niggle to bordering on an outright annoyance when I generally feel...
Well done advocates. I’ve just done the conversions, $3m Australian dollars is £1.6m and around $2m US dollars. Not bad size sum for a country...
Looks good. I think that Australia Likewise has this approach.
Good for them. On another thread Michael VanElzakker said something like “we shouldn’t be approaching chronic illness research from a mindset of...
These surveys bring up alot of case studies/examples of very sad outcomes which I think are Often very under represented otherwise. The harm...
https://www.actionforme.org.uk/uploads/images/2019/10/action-for-me-annual-report-2018-2019.pdf Prof Stephen Holgate CBE, FMedSci
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